Lee Yoo Jeong, Kim Sun-Hyun, Yoo Shin Hye, Kim A-Sol, Lin Cheng-Pei, Martina Diah, Mori Masanori, Suh Sang-Yeon
Palliative Care Center and Department of Family Medicine, Korea University Guro Hospital, Seoul, Korea.
Department of Family Medicine, School of Medicine, Catholic Kwandong University, International St. Mary's Hospital, Incheon, Korea.
J Hosp Palliat Care. 2024 Dec 1;27(4):107-119. doi: 10.14475/jhpc.2024.27.4.107.
Advance care planning (ACP) in palliative care is essential for patient autonomy and quality of dying. This review explores ACP practices in South Korea, Japan, and Taiwan, highlighting how legislation and cultural values shape those practices. In these three sectors, which are influenced by Confucian values, family involvement plays a significant role in decision-making. In South Korea, the Life-Sustaining Treatment Decisions Act made ACP processes mandatory at all healthcare institutions and rapidly created advance directive registration agencies nationwide, with a national web-based system for legal documentation. The Act's narrow focus on terminal illness and dying phase may inadvertently delay end-of-life discussions. A broader social consensus is needed to allocate end-of-life care resources in a way that reflects patients' and families' wishes. Japan's family-based approach highlights relational autonomy, with ACP timing varying and no formal legal frameworks for advance directives. Expanded palliative care, ACP guidelines, systemic support, and public awareness drive progress in Japan. Taiwan's two relevant legislative frameworks-the Hospice Palliative Care Act and Patient Right to Autonomy Act-expand palliative care services for terminal illnesses and non-cancer diseases such as severe dementia, irreversible coma, and a persistent vegetative state. Misunderstandings of ACP and family-led decision-making may hinder ACP uptake. ACP referral based on patient care needs rather than terminal diagnoses is suggested. Overcoming common barriers in Asia necessitates open dialogues about death and public education. A standardized legal framework and comprehensive training for healthcare providers are equally important. Further international collaboration will suggest culturally sensitive ACP conversations across Asia.
姑息治疗中的预先护理计划(ACP)对于患者自主权和死亡质量至关重要。本综述探讨了韩国、日本和台湾地区的ACP实践,强调了立法和文化价值观如何塑造这些实践。在受儒家价值观影响的这三个地区,家庭参与在决策中发挥着重要作用。在韩国,《维持生命治疗决策法》使所有医疗机构的ACP流程成为强制性规定,并迅速在全国范围内设立了预先指示登记机构,还有一个基于网络的全国性法律文件系统。该法案对晚期疾病和临终阶段的狭隘关注可能会无意中延迟临终讨论。需要达成更广泛的社会共识,以便以反映患者及其家庭意愿的方式分配临终护理资源。日本基于家庭的方法强调关系自主性,ACP的时机各不相同,且没有关于预先指示的正式法律框架。扩大姑息治疗、ACP指南、系统支持和公众意识推动了日本的进步。台湾的两个相关立法框架——《安宁缓和医疗条例》和《病人自主权利法》——扩大了针对晚期疾病以及严重痴呆、不可逆昏迷和持续性植物状态等非癌症疾病的姑息治疗服务。对ACP的误解和家庭主导的决策可能会阻碍ACP的采用。建议根据患者护理需求而非终末期诊断进行ACP转诊。克服亚洲的常见障碍需要就死亡问题展开公开对话和进行公众教育。标准化的法律框架和对医疗服务提供者的全面培训同样重要。进一步的国际合作将促进亚洲各地开展具有文化敏感性的ACP对话。