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时间的仲裁者:脊髓损伤成年患者的衰老经历

Arbiters of Time: The Experience of Adults Aging with Spinal Cord Injury.

作者信息

Reber Lisa, Tan Nasya S W, Meade Michelle A, Forchheimer Martin, Tate Denise G, Clarke Philippa

机构信息

Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI 48108, USA.

Center for Social Epidemiology and Population Health, Department of Epidemiology, School of Public Health, University of Michigan, Ann Arbor, MI 48109, USA.

出版信息

J Ageing Longev. 2023;3(1). doi: 10.3390/jal3010005.

Abstract

Time is a fundamental component of our lives. It is both objective, a structure outside of ourselves, and subjective, an element that is relative to the life we live and how we experience it. The disabled body must come to terms with time to understand the future impact of the injury and its progression, as well as how the injury will impose a new more accelerated aging process in the body, resulting in a compressed lifespan. The body also challenges time's control of the body. This paper extends the literature on the study of time to the experience of adults aging with a spinal cord injury (SCI). Drawing from interviews conducted with adults with long-term SCI, it examines how their narratives about aging and the proactive management of their lives reflect their orientation toward and anticipation of the future. Recognizing that the spoken word often carries a multiplicity of meanings, it considers what participants' words might imply about their engagement with time. The results of this study show that the process of aging is characterized by uncertainty and the expectations of functional and health decline, requiring a sense of urgency and vigilance in the face of the uncertain course of aging with SCI. Participants understood that their lifespan was compressed due to the physiological impact of accelerated aging. Knowledge of this compression made time a scarce resource. Yet, despite it being the arbiters of their futures, so too were they the arbiters of time.

摘要

时间是我们生活的基本组成部分。它既是客观的,是一种存在于我们自身之外的结构,也是主观的,是一个与我们所过的生活以及我们如何体验它相关的元素。残疾身体必须适应时间,以了解损伤的未来影响及其发展进程,以及损伤将如何在身体中引发一个新的、加速的衰老过程,从而导致寿命缩短。身体也对时间对身体的控制提出了挑战。本文将关于时间研究的文献扩展到脊髓损伤(SCI)成年患者的经历。通过对长期患有SCI的成年人进行访谈,研究他们关于衰老的叙述以及对生活的积极管理如何反映他们对未来的取向和预期。认识到言语往往具有多重含义,本文思考参与者的话语可能暗示他们与时间的关系。这项研究的结果表明,衰老过程的特点是不确定性以及对功能和健康衰退的预期,面对SCI导致的不确定衰老过程,需要紧迫感和警惕性。参与者明白,由于加速衰老的生理影响,他们的寿命缩短了。对这种缩短的认识使时间成为一种稀缺资源。然而,尽管时间是他们未来的仲裁者,但他们也是时间的仲裁者。

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本文引用的文献

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Racism and the Life Course: Taking Time Seriously.种族主义与生命历程:认真对待时间。
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