Department of Sociology, Ludwig-Maximilians-Universität München, Konradstraße 6, 80801, Munich, Germany.
Department of Catholic Theology, Ludwig-Maximilians-Universität München, Munich, Germany.
BMC Palliat Care. 2024 Mar 28;23(1):81. doi: 10.1186/s12904-024-01409-3.
Volunteers have always been integral to hospice and palliative care. However, their roles have been left relatively undefined and broad.
This study aims to examine the role of hospice volunteers in German inpatient hospice and palliative care. The question we seek to answer is: What do hospice volunteers contribute to everyday life in inpatient hospice and palliative care units?
We undertook a multicenter, on-site qualitative interview study, utilizing problem-centered interviews with 16 volunteers from five inpatient hospice units and one hospital palliative care unit. Interviews were analyzed using grounded theory.
Analysis of the interviews revealed three typical characteristics of how hospice volunteers' describe their own role: (1) performing small acts of kindness, (2) creating a family-like atmosphere, (3) expecting emotional experiences. A common theme across all categories is the emphasis on spontaneous actions and personal experiences. The process of dying becomes an experience interpreted by volunteers as enriching, as a gift, as a "teacher".
Granting hospice volunteers freedom to act spontaneously and intuitively benefits hospice and palliative care delivery. Organizations should leave sufficient room for spontaneity in order to involve volunteers effectively. Open and unstandardized roles facilitate dynamic work practices.
志愿者一直是临终关怀和姑息治疗不可或缺的一部分。然而,他们的角色相对来说没有明确定义,也比较广泛。
本研究旨在探讨德国住院临终关怀和姑息治疗中,临终关怀志愿者的角色。我们要回答的问题是:临终关怀志愿者对住院临终关怀和姑息治疗病房的日常生活有什么贡献?
我们进行了一项多中心现场定性访谈研究,采用以问题为中心的方法,对来自五个住院临终关怀病房和一个医院姑息治疗病房的 16 名志愿者进行了访谈。采用扎根理论对访谈进行分析。
对访谈的分析揭示了志愿者描述自己角色的三个典型特征:(1)做一些小的善举;(2)营造一种家庭般的氛围;(3)期待情感体验。所有类别都有一个共同的主题,即强调自发的行动和个人的经历。临终过程被志愿者视为一种丰富、一种礼物、一种“老师”。
给予临终关怀志愿者自由地自发行动的机会,有利于临终关怀和姑息治疗的提供。组织应该为自发性留出足够的空间,以便有效地吸引志愿者。开放和非标准化的角色促进了动态的工作实践。