Majumdar Dalia, Webb Diane, Parsons Stephanie, Selwan-Lewis Elizabeth M, Rettig Trisha, Chastain Emily, Obanor Winifred, Birnberg Rob, Kuang Amy
AbbVie Inc, North Chicago, IL, USA.
Health Literacy Media, St. Louis, MO, USA.
Curr Med Res Opin. 2024 May 6:1-8. doi: 10.1080/03007995.2024.2340720.
Effective health communication is critical for understanding and acting on health information. This cross-sectional study explored participants' understanding of their health condition, their preferences for receiving health communications, and their interest in receiving clinical trial results across several therapeutic areas.
The study recruited participants social media, email newsletters, and advocacy organizations. An online screener captured demographic information (health conditions, age, race/ethnicity, gender, and education). Eligible participants were emailed an online survey assessing preferred sources and formats for receiving health information, interest in learning about topics related to the results of clinical trials, and health literacy levels.
In total, 449 participants (median age, 35 years [range, 18-76]; White, 53%; higher education, 65%; mean (range) health literacy score, 1.9 [0.4-3.0]) from 45 US states completed the survey representing 12 disease indications (bipolar, blood and solid tumor cancers, irritable bowel syndrome, inflammatory bowel disease, major depressive disorder, migraine, Parkinson's, psoriasis/atopic dermatitis, retinal vein occlusion/macular degeneration, rheumatoid arthritis, and spasticity). Healthcare providers were the preferred source of health information (59%), followed by Internet searches (11%). Least preferred sources were social media (5%), friends/family (3%), and email newsletters (2%). Participants preferred multiple formats and ranked reading materials online as most preferred (33%), along with videos (28%) and infographics (27%). Printed materials (14%) and audio podcasts (9%) were the least preferred formats. A majority of the participants reported that the health information they found was hard to understand (57%) and confusing (62%). Most participants (85%) were somewhat/very interested in learning about clinical trial results, with the highest interest in short summaries of safety (78%) and efficacy (74%) results.
Effective health communication may be achieved multiple formats shared directly by healthcare providers.
有效的健康沟通对于理解健康信息并据此采取行动至关重要。这项横断面研究探讨了参与者对自身健康状况的理解、接收健康信息的偏好，以及他们对多个治疗领域临床试验结果的兴趣。
该研究通过社交媒体、电子邮件时事通讯和倡导组织招募参与者。在线筛选器收集了人口统计学信息（健康状况、年龄、种族/民族、性别和教育程度）。符合条件的参与者通过电子邮件收到一份在线调查问卷，评估接收健康信息的首选来源和形式、了解与临床试验结果相关主题的兴趣以及健康素养水平。
来自美国45个州的449名参与者（年龄中位数为35岁[范围为18 - 76岁]；白人占53%；高等教育程度占65%；健康素养得分平均（范围）为1.9[0.4 - 3.0]）完成了调查，代表12种疾病指征（双相情感障碍、血液和实体肿瘤癌症、肠易激综合征、炎症性肠病、重度抑郁症、偏头痛、帕金森病、银屑病/特应性皮炎、视网膜静脉阻塞/黄斑变性、类风湿关节炎和痉挛）。医疗保健提供者是健康信息的首选来源（59%），其次是互联网搜索（11%）。最不喜欢的来源是社交媒体（5%）、朋友/家人（3%）和电子邮件时事通讯（2%）。参与者更喜欢多种形式，并将在线阅读材料列为最受欢迎的形式（33%），其次是视频（28%）和信息图表（27%）。印刷材料（14%）和音频播客（9%）是最不受欢迎的形式。大多数参与者报告称他们找到的健康信息难以理解（57%）且令人困惑（62%）。大多数参与者（85%）对了解临床试验结果有些/非常感兴趣，对安全性（78%）和疗效（74%）结果的简短总结兴趣最高。
通过医疗保健提供者直接分享的多种形式可能实现有效的健康沟通。
