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生命末期的慈悲社区和慈悲城市实施模式:系统评价。

Implementation Models of Compassionate Communities and Compassionate Cities at the End of Life: A Systematic Review.

机构信息

New Health Foundation, 41004 Sevilla, Spain.

Palliative Care Team, Arnau de Villanova Hospital, 25198 Lleida, Spain.

出版信息

Int J Environ Res Public Health. 2020 Aug 28;17(17):6271. doi: 10.3390/ijerph17176271.

DOI:10.3390/ijerph17176271
PMID:32872244
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7504622/
Abstract

In the last decade, we have seen a growth of Compassionate Communities and Cities (CCC) at the end of life. There has been an evolution of organizations that help construct Community-Based Palliative Care programs. The objective is to analyze the implementation, methodology and effectiveness of the CCC models at the end of life. We conducted a systematic review following PRISMA ScR Guideline. The protocol was registered on PROSPERO (CRD42017068501). Five databases (MEDLINE, EMBASE, Web of Science, CINAHL and Google Scholar) were searched for studies (from 2000 to 2018) using set eligibility criteria. Three reviewers screened full-texts articles and extracted study data. Outcomes were filled in a registration form which included a narrative synthesis of each article. We screened 1975 records. We retrieved 112 articles and included 31 articles for the final analysis: 17 descriptive studies, 4 interventions studies, 4 reviews and 6 qualitative studies. A total of 11 studies regard the development models of CCC at the end of life, 15 studies were about evaluation of compassionate communities' programs and 5 studies were about protocols for the development of CCC programs. There is poor evidence of the implementation and evaluation models of CCC at the end of life. There is little and low-/very low-quality evidence about CCC development and assessment models. We found no data published on care intervention in advance disease and end of life. A global model for the development and evaluation of CCC at the end of life seems to be necessary.

摘要

在过去的十年中,我们见证了临终关怀社区和城市(CCC)的发展。帮助构建基于社区的姑息治疗计划的组织也在不断发展。其目的是分析临终关怀社区模式的实施、方法和效果。我们按照 PRISMA ScR 指南进行了系统评价。该方案已在 PROSPERO(CRD42017068501)上注册。使用既定的纳入标准,在五个数据库(MEDLINE、EMBASE、Web of Science、CINAHL 和 Google Scholar)中搜索了 2000 年至 2018 年的研究。三名审查员筛选了全文文章并提取了研究数据。研究结果填写在登记表中,其中包括对每篇文章的叙述性综合。我们筛选了 1975 条记录。我们检索到 112 篇文章,并纳入 31 篇文章进行最终分析:17 项描述性研究、4 项干预研究、4 项综述和 6 项定性研究。共有 11 项研究涉及临终关怀社区模式的开发模型,15 项研究涉及对慈悲社区项目的评估,5 项研究涉及临终关怀社区模式项目的开发协议。临终关怀社区模式的实施和评估模型的证据不足。关于临终关怀社区的发展和评估模型的证据很少且质量低/非常低。我们没有发现关于预先疾病和临终关怀干预措施的数据。似乎需要制定一个全球的临终关怀社区模式的开发和评估模型。

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本文引用的文献

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Development and Management of Networks of Care at the End of Life (the REDCUIDA Intervention): Protocol for a Nonrandomized Controlled Trial.临终关怀网络的发展与管理(REDCUIDA 干预措施):非随机对照试验方案
JMIR Res Protoc. 2018 Oct 12;7(10):e10515. doi: 10.2196/10515.
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Compassion in palliative care: a review.姑息治疗中的同情心:综述
Curr Opin Support Palliat Care. 2018 Dec;12(4):472-479. doi: 10.1097/SPC.0000000000000393.
3
Scotland's public health palliative care alliance.苏格兰公共卫生姑息治疗联盟。
针对与儿童及其家庭合作的社区志愿者的姑息治疗培训项目:一项范围综述
Front Public Health. 2025 May 16;13:1469854. doi: 10.3389/fpubh.2025.1469854. eCollection 2025.
4
Cognitive Authority Theory: Reframing health inequity, disadvantage and privilege in palliative and end-of-life care.认知权威理论:重新构建姑息治疗和临终关怀中的健康不平等、劣势与特权问题。
Palliat Med. 2025 Apr;39(4):448-459. doi: 10.1177/02692163251321713. Epub 2025 Feb 26.
5
Assessing and comparing compassionate communities benefits across cities in diverse cultural contexts: a step toward the identification of the most important ones.评估和比较不同文化背景城市中关怀性社区的益处:迈向识别最重要益处的一步。
Palliat Care Soc Pract. 2025 Jan 26;19:26323524251314899. doi: 10.1177/26323524251314899. eCollection 2025.
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Compassionate engagement of communities in support of palliative and end-of-life care: challenges in post-pandemic era.社区在支持姑息治疗和临终关怀方面的富有同情心的参与:大流行后时代的挑战。
Front Med (Lausanne). 2024 Oct 18;11:1489299. doi: 10.3389/fmed.2024.1489299. eCollection 2024.
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Where are the values in evaluating palliative care? Learning from community-based palliative care provision.评估姑息治疗的价值何在?从社区姑息治疗服务中汲取经验。
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Compassionate collaborative care: an integrative review of quality indicators in end-of-life care.富有同情心的协作护理:终末期关怀质量指标的综合评价。
BMC Palliat Care. 2017 Dec 1;16(1):65. doi: 10.1186/s12904-017-0246-4.
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Seven Guiding Commitments: Making the U.S. Healthcare System More Compassionate.七项指导承诺:让美国医疗保健系统更具同情心。
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