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本文引用的文献

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Contin Educ. 2020 Mar 10;1(1):37-47. doi: 10.5334/cie.14. eCollection 2020.
2
Children and Youth With Special Health Care Needs: A Profile.有特殊健康需要的儿童和青年:概况。
Pediatrics. 2022 Jun 1;149(Suppl 7). doi: 10.1542/peds.2021-056150D.
3
Better support for children with additional health and developmental needs in school settings: Perspectives of education experts.为学校环境中有额外健康和发展需求的儿童提供更好的支持:教育专家的观点。
Child Care Health Dev. 2020 Jul;46(4):522-529. doi: 10.1111/cch.12766. Epub 2020 Mar 24.
4
Epidemiology of Children With Multiple Complex Chronic Conditions in a Mixed Urban-Rural US Community.美国城乡混合社区中患有多种复杂慢性病儿童的流行病学
Hosp Pediatr. 2019 Apr;9(4):281-290. doi: 10.1542/hpeds.2018-0091.
5
Participation of children with disabilities in school: A realist systematic review of psychosocial and environmental factors.残疾儿童的学校参与:心理社会和环境因素的真实系统评价。
PLoS One. 2019 Jan 29;14(1):e0210511. doi: 10.1371/journal.pone.0210511. eCollection 2019.
6
Trends in the prevalence and distribution of teacher-identified special health-care needs across three successive population cohorts.连续三个年龄组中教师确认的特殊医疗保健需求的患病率和分布趋势。
J Paediatr Child Health. 2019 Mar;55(3):312-319. doi: 10.1111/jpc.14192. Epub 2018 Aug 30.
7
Why chronically ill children face challenges in regular classrooms: perspectives from nursing teachers in Japan.慢性病患儿在普通教室面临的挑战:来自日本护理教师的观点。
Child Care Health Dev. 2017 Mar;43(2):281-288. doi: 10.1111/cch.12423. Epub 2016 Oct 25.
8
Prevalence of reported physical health problems in people with severe or profound intellectual and motor disabilities: a cross-sectional study of medical records and care plans.重度或极重度智力与运动残疾者自述身体健康问题的患病率:一项病历与护理计划的横断面研究
J Intellect Disabil Res. 2016 Nov;60(11):1109-1118. doi: 10.1111/jir.12298. Epub 2016 May 20.
9
Parent and teacher perceptions of emerging special health care needs.家长和教师对新出现的特殊医疗需求的认知。
J Paediatr Child Health. 2016 Oct;52(10):950-956. doi: 10.1111/jpc.13188. Epub 2016 May 11.
10
The nature of peer-directed behaviours in children with profound intellectual and multiple disabilities and its relationship with social scaffolding behaviours of the direct support worker.重度智力和多重残疾儿童的同伴导向行为的本质及其与直接支持工作者的社会支持行为的关系。
Child Care Health Dev. 2016 Jan;42(1):98-108. doi: 10.1111/cch.12295. Epub 2015 Oct 22.

特殊教育教师与患有慢性复杂疾病儿童之间的互动:一项定性研究。

Interactions between special education teachers and children with chronic complex conditions: A qualitative study.

作者信息

Fujino Haruo, Matsumoto Megumi, Mieno Aya

机构信息

Department of Special Needs Education, Oita University, Dannoharu 700, Oita, 8701192, Japan.

Department of Child Development, United Graduate School of Child Development, Osaka University, Yamadaoka 2-2, Suita, Osaka, 5650871, Japan.

出版信息

F1000Res. 2024 May 22;12:23. doi: 10.12688/f1000research.129122.2. eCollection 2023.

DOI:10.12688/f1000research.129122.2
PMID:38726303
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11079580/
Abstract

BACKGROUND

The number of children with complex medical conditions has increased in recent decades. In this context, a complex chronic condition is characterized by multiple morbidities that require intensive or continuous health care according to the level of severity. Given their various health conditions, it is challenging to provide special education to these children, but there is still insufficient evidence regarding the practical experiences of educators. The aim of this study was to investigate special education teacher's perceptions, experiences, and challenges while developing interpersonal relationships and communicating with children who have complex chronic conditions.

METHODS

We recruited and interviewed 21 special education school teachers in Japan. The transcripts of the interviews were analyzed using thematic analysis.

RESULTS

Our analysis revealed four themes, including "searching for the meaning," "complex chronic conditions as a difficult reality," "widening experience for the future," and "priority for interacting with children." These themes reflect the perceptions, experiences, and challenges of the special education teachers.

CONCLUSIONS

In cases where children have severe functional limitations, it is more challenging to understand child-teacher interactions. This highlights the importance of searching for meaning in educational practices used among children with complex chronic conditions. Our findings may provide helpful insight into the experiences and challenges faced by special educators who engage with these children.

摘要

背景

近几十年来,患有复杂病症的儿童数量有所增加。在这种情况下,复杂慢性病的特征是多种疾病,需要根据严重程度提供强化或持续的医疗护理。鉴于这些儿童的各种健康状况,为他们提供特殊教育具有挑战性,但关于教育工作者实际经验的证据仍然不足。本研究的目的是调查特殊教育教师在与患有复杂慢性病的儿童建立人际关系和沟通时的看法、经验和挑战。

方法

我们招募并采访了日本21名特殊教育学校教师。使用主题分析法对访谈记录进行了分析。

结果

我们的分析揭示了四个主题,包括“寻找意义”、“复杂慢性病是艰难现实”、“拓宽未来经验”以及“与儿童互动的优先事项”。这些主题反映了特殊教育教师的看法、经验和挑战。

结论

在儿童存在严重功能限制的情况下,理解师生互动更具挑战性。这凸显了在患有复杂慢性病的儿童所采用的教育实践中寻找意义的重要性。我们的研究结果可能为与这些儿童打交道的特殊教育工作者所面临的经验和挑战提供有益的见解。