与临床医生讨论在线癌症信息：对癌症患者和替代信息寻求者的调查。
Talking with clinicians about online cancer information: a survey of cancer patients and surrogate information seekers.
机构信息
College of Medicine, University of Florida, Gainesville, FL, 32611, USA.
School of Creative Arts and Letters Flagler College, St. Augustine, FL, 32084, USA.
出版信息
Support Care Cancer. 2024 May 17;32(6):362. doi: 10.1007/s00520-024-08578-0.
OBJECTIVES
To describe patients' and surrogate information seekers' experiences talking to clinicians about online cancer information. To assess the impact of clinicians telling patients or surrogate seekers not to search for information online.
DESIGN
Cross-sectional survey.
SAMPLE
A total of 282 participants, including 185 individuals with cancer and 97 surrogate seekers.
METHODS
Individuals were recruited through a broad consent registry and completed a 20-min survey.
FINDINGS
Cancer patients and surrogate seekers did not differ significantly in their experiences talking with clinicians about online cancer information. Nearly all patients and surrogate seekers who were told by a clinician not to go online for cancer information did so anyway.
IMPLICATIONS
Interventions for improving cancer information seeking and communication with clinicians should target both patients and surrogate seekers. Clinicians should be educated about effective ways to communicate with patients and surrogate seekers about online cancer information.
目的
描述患者和代理人信息寻求者与临床医生就在线癌症信息进行交流的体验。评估临床医生告知患者或代理人不要在网上搜索信息的影响。
设计
横断面调查。
样本
共有 282 名参与者，包括 185 名癌症患者和 97 名代理人寻求者。
方法
通过广泛同意登记册招募个人，并完成了 20 分钟的调查。
结果
与临床医生谈论在线癌症信息方面，癌症患者和代理人寻求者的经历没有显著差异。几乎所有被临床医生告知不要上网搜索癌症信息的患者和代理人寻求者都不顾医嘱自行上网搜索。
影响
为改善癌症信息搜索和与临床医生的沟通而进行的干预措施应该同时针对患者和代理人寻求者。应教育临床医生有关与患者和代理人寻求者就在线癌症信息进行有效沟通的方法。
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