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与临床医生讨论在线癌症信息:对癌症患者和替代信息寻求者的调查。

Talking with clinicians about online cancer information: a survey of cancer patients and surrogate information seekers.

机构信息

College of Medicine, University of Florida, Gainesville, FL, 32611, USA.

School of Creative Arts and Letters Flagler College, St. Augustine, FL, 32084, USA.

出版信息

Support Care Cancer. 2024 May 17;32(6):362. doi: 10.1007/s00520-024-08578-0.


DOI:10.1007/s00520-024-08578-0
PMID:38755329
Abstract

OBJECTIVES: To describe patients' and surrogate information seekers' experiences talking to clinicians about online cancer information. To assess the impact of clinicians telling patients or surrogate seekers not to search for information online. DESIGN: Cross-sectional survey. SAMPLE: A total of 282 participants, including 185 individuals with cancer and 97 surrogate seekers. METHODS: Individuals were recruited through a broad consent registry and completed a 20-min survey. FINDINGS: Cancer patients and surrogate seekers did not differ significantly in their experiences talking with clinicians about online cancer information. Nearly all patients and surrogate seekers who were told by a clinician not to go online for cancer information did so anyway. IMPLICATIONS: Interventions for improving cancer information seeking and communication with clinicians should target both patients and surrogate seekers. Clinicians should be educated about effective ways to communicate with patients and surrogate seekers about online cancer information.

摘要

目的:描述患者和代理人信息寻求者与临床医生就在线癌症信息进行交流的体验。评估临床医生告知患者或代理人不要在网上搜索信息的影响。

设计:横断面调查。

样本:共有 282 名参与者,包括 185 名癌症患者和 97 名代理人寻求者。

方法:通过广泛同意登记册招募个人,并完成了 20 分钟的调查。

结果:与临床医生谈论在线癌症信息方面,癌症患者和代理人寻求者的经历没有显著差异。几乎所有被临床医生告知不要上网搜索癌症信息的患者和代理人寻求者都不顾医嘱自行上网搜索。

影响:为改善癌症信息搜索和与临床医生的沟通而进行的干预措施应该同时针对患者和代理人寻求者。应教育临床医生有关与患者和代理人寻求者就在线癌症信息进行有效沟通的方法。

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[2]
Impact of Patients' Companions on Clinical Encounters Between Black Patients and Their Non-Black Oncologists.

JCO Oncol Pract. 2021-5

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Understanding of Health-related Decision-making Terminology Among Cancer Caregivers.

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[4]
The extent to which cancer patients trust in cancer-related online information: a systematic review.

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[5]
Caregiver Well-being and the Quality of Cancer Care.

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[6]
Internet Health Information Seeking and the Patient-Physician Relationship: A Systematic Review.

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[7]
Health-Related Internet Use by Informal Caregivers of Children and Adolescents: An Integrative Literature Review.

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[8]
Cancer-related internet information communication between oncologists and patients with breast cancer: a qualitative study.

Psychooncology. 2015-11

[9]
Health information-seeking on behalf of others: characteristics of "surrogate seekers".

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[10]
Toward a greater understanding of breast cancer patients' decisions to discuss cancer-related internet information with their doctors: an exploratory study.

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