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运用基于经验的共同设计为首发精神病患者设计和实施身体锻炼干预措施:来自印度钦奈的一项试点研究。

Designing and implementing a physical exercise intervention for people with first episode psychosis using experience-based co-design: A pilot study from Chennai, India.

机构信息

Schizophrenia Research Foundation, R/7A, North Main Road, Anna Nagar West Extension, Chennai, India.

Schizophrenia Research Foundation, R/7A, North Main Road, Anna Nagar West Extension, Chennai, India.

出版信息

Asian J Psychiatr. 2024 Jul;97:104072. doi: 10.1016/j.ajp.2024.104072. Epub 2024 May 15.

DOI:10.1016/j.ajp.2024.104072
PMID:38815437
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11279196/
Abstract

BACKGROUND

Physical exercise can improve outcomes for people with first-episode psychosis (FEP). Co-designing physical exercise interventions with end users has the potential to enhance their acceptability, feasibility, and long-term viability. This study's objective was to use experience-based co-design (EBCD) methodology to develop a physical exercise intervention for FEP, and pilot test it.

METHODS

The study was conducted at the Schizophrenia Research Foundation's FEP program in Chennai, India. Participants(N=36) were individuals with FEP and their caregivers, mental health professionals (MHPs, and physical training experts. EBCD methodology included one-to-one interviews, focus group discussions, joint conferences, and co-design workshops. Two instructional videos were developed. Twelve FEP patients engaged in physical exercise with help of the videos over three months. They were followed up through weekly phone calls and in-person interviews to capture data on regularity, frequency, location of exercise, and comfort levels.

RESULTS

Several touch points emerged from the interviews, focus groups, and joint meetings including lack of motivation, knowledge about physical exercise; differing perspectives about physical exercise; limited resource, and time constraints. Two instructional videos demonstrating activities for participants incorporated strategies that addressed these touch points. Pilot data indicated that participants engaged with the physical exercise intervention over 3 months.

CONCLUSION

This was the first study to use co-design methodology to design a physical exercise intervention for first-episode psychosis. The intervention may have therefore been responsive to stakeholder needs and preferences. Results of this study highlight the potential of co-design in designing and adapting interventions. There is need for rigorous testing with larger samples.

摘要

背景

体育锻炼可以改善首发精神病患者(FEP)的预后。与最终用户共同设计体育锻炼干预措施有可能提高其可接受性、可行性和长期可持续性。本研究的目的是使用基于经验的共同设计(EBCD)方法为 FEP 开发并试点测试一种体育锻炼干预措施。

方法

该研究在印度钦奈的 Schizophrenia Research Foundation 的 FEP 计划中进行。参与者(N=36)为首发精神病患者及其照顾者、心理健康专业人员(MHPs)和体能训练专家。EBCD 方法包括一对一访谈、焦点小组讨论、联席会议和共同设计研讨会。开发了两个教学视频。12 名 FEP 患者在视频的帮助下进行了为期三个月的体育锻炼。通过每周电话和面对面访谈跟踪他们的情况,以获取关于锻炼的规律性、频率、地点和舒适度的数据。

结果

访谈、焦点小组和联席会议中出现了多个接触点,包括缺乏锻炼的动力和知识、对锻炼的不同看法、有限的资源和时间限制。两个演示活动的教学视频纳入了针对这些接触点的策略。试点数据表明,参与者在 3 个月内参与了体育锻炼干预。

结论

这是第一项使用共同设计方法为首发精神病设计体育锻炼干预的研究。因此,该干预措施可能针对利益相关者的需求和偏好。本研究结果强调了共同设计在设计和调整干预措施方面的潜力。需要用更大的样本进行严格的测试。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/21b1/11279196/e7f502b39254/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/21b1/11279196/edd2f9bead50/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/21b1/11279196/e7f502b39254/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/21b1/11279196/edd2f9bead50/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/21b1/11279196/e7f502b39254/gr2.jpg

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