由有亲身经历和正在经历相关情况的专家以及研究人员共同制定一份关于人格障碍领域的明智研究议程。
Towards an informed research agenda for the field of personality disorders by experts with lived and living experience and researchers.
作者信息
Renneberg Babette, Hutsebaut Joost, Berens Ann, De Panfilis Chiara, Bertsch Katja, Kaera Andres, Kramer Ueli, Schmahl Christian, Swales Michaela, Taubner Svenja, Alvarez Mariana Mendoza, Sieg Julia
机构信息
Department of Clinical Psychology and Psychotherapy, Freie Universität Berlin, Habelschwerdter Allee 45, 14195, Berlin, Germany.
German Center for Mental Health (DZPG), partner site Berlin, Berlin, Germany.
出版信息
Borderline Personal Disord Emot Dysregul. 2024 Jul 8;11(1):14. doi: 10.1186/s40479-024-00257-0.
BACKGROUND
We describe a collection of themes for a research agenda for personality disorders that was originally formulated for the ESSPD Borderline Congress in 2022.
METHODS
Experts with lived and living experience (EE), researchers and clinicians met virtually, exchanged ideas and discussed research topics for the field of personality disorders. The experts - patients, relatives, significant others - named the topics they thought most relevant for further research in the field. These topics were presented at the ESPPD conference in October 2022.
RESULTS
The five top themes were: 1. Prevention, early detection and intervention, 2. Recovery beyond symptom improvement, 3. Involvement of relatives in treatment, 4. Gender dysphoria, and 5. Stigma.
CONCLUSIONS
In general, the topics reflect current issues and changes in societal values. Overarching aims of research on these topics are the improvement of social participation and integration in society, better dissemination of research, and better information of the general public and political stakeholders.
背景
我们描述了一份人格障碍研究议程的主题集，该议程最初是为2022年欧洲人格障碍研究与治疗协会（ESSPD）边缘型人格障碍大会制定的。
方法
有实际生活经历的专家（EE）、研究人员和临床医生进行了线上会面，交流想法并讨论了人格障碍领域的研究课题。这些专家——患者、亲属、重要他人——列举了他们认为对该领域进一步研究最相关的课题。这些课题在2022年10月的ESSPD会议上进行了展示。
结果
排名前五的主题分别是：1. 预防、早期检测与干预；2. 超越症状改善的康复；3. 亲属参与治疗；4. 性别焦虑；5. 污名化。
结论
总体而言，这些主题反映了当前的问题和社会价值观的变化。对这些主题进行研究的总体目标是改善社会参与和融入社会的程度，更好地传播研究成果，以及让公众和政治利益相关者获得更多信息。
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