Nisha Sonia Islam, Bakul Fariea
Department of Communication Disorders, University of Dhaka, Dhaka, Bangladesh.
Department of Psychology, University of Dhaka, Dhaka, Bangladesh.
Int J Dev Disabil. 2022 Oct 11;70(4):594-603. doi: 10.1080/20473869.2022.2121140. eCollection 2024.
: The coronavirus pandemic (CP) leading to prolonged lockdown, and restriction of movement for almost two years in Bangladesh severely affected not only the well-being (physical and mental health) of both children and adults but also their access to home-based learning. The present study aimed to explore the mental, and physical health problems of children with neurodevelopmental disorders (NDDs), their use of telehealth services, and the status of their home-based learning by asking questions to their parents/primary caregivers ( = 149) during the second year of lockdown (November and December 2021). : The present study was a cross-sectional self-reported survey covering as many parents/primary caregivers as possible within Bangladesh. The survey questions were selected from a larger study by Masi named 'COVID-19 impact survey' with permission. A total of 149 parents/primary caregivers with one or more children (mean age = 5.54) having any of the NDDs took part in the survey. Data were collected via physical sitting, telephone interview, and anonymous Google form. : Almost one-third of parents/caregivers felt that the NDD symptoms of their children were worsening with time, and half of them reported that their children's health and well-being were negatively impacted. More than 90% of the caregivers felt that their children are facing challenges following the rules of social distancing. Whereas more than 80% of parents agreed that their children's learning was disrupted during covid-19, and they were not getting enough online/offline support from the authorities. : The outcome of this study suggested that CP had a significant impact on the wellbeing and home-based learning of children with NDDs and their families in Bangladesh. Most of the caregivers reported that the NDDs symptoms of their children are worsening with disrupted routine, facing problems following social distancing and maintaining fruitful relationships. In terms of home-based learning, most caregivers reported insufficient support from school authorities. The parents recommended the development of an adequate system for telehealth services and policies to help the vulnerable individuals in the future.
冠状病毒大流行（CP）导致孟加拉国长期封锁并限制人员流动近两年，这不仅严重影响了儿童和成人的幸福（身心健康），还影响了他们接受居家学习的机会。本研究旨在通过在封锁的第二年（2021年11月和12月）向149名家长/主要照顾者提问，探讨神经发育障碍（NDDs）儿童的身心健康问题、他们对远程医疗服务的使用情况以及居家学习状况。
本研究是一项横断面自我报告调查，涵盖了孟加拉国尽可能多的家长/主要照顾者。调查问题经许可从Masi的一项名为“COVID-19影响调查”的更大规模研究中选取。共有149名有一个或多个患有任何神经发育障碍（平均年龄 = 5.54岁）儿童的家长/主要照顾者参与了调查。数据通过面对面访谈、电话访谈和匿名谷歌表单收集。
近三分之一的家长/照顾者认为他们孩子的神经发育障碍症状随时间恶化，其中一半报告称孩子的健康和幸福受到了负面影响。超过90%的照顾者认为他们的孩子在遵守社交距离规则方面面临挑战。而超过80%的家长同意他们孩子的学习在新冠疫情期间受到干扰，并且他们没有从当局获得足够的在线/离线支持。
这项研究的结果表明，冠状病毒大流行对孟加拉国患有神经发育障碍的儿童及其家庭的幸福和居家学习产生了重大影响。大多数照顾者报告称，他们孩子的神经发育障碍症状因日常活动被打乱、遵守社交距离以及维持良好关系方面面临问题而恶化。在居家学习方面，大多数照顾者报告称学校当局提供的支持不足。家长们建议未来应建立一个完善的远程医疗服务系统和政策，以帮助弱势群体。
