Universidad Rey Juan Carlos, 28922 Alcorcón, España.
Asociación de Leganés de Esclerosis Múltiple (ALEM), Leganés, España.
Rev Neurol. 2024 Aug 1;79(3):77-88. doi: 10.33588/rn.7903.2024091.
The use of YouTube® has spread among patients with chronic diseases such as multiple sclerosis (MS). These patients consult the available videos to learn more about their disease in terms of diagnosis and making decisions about treatments, including rehabilitation. The aim of this study was to evaluate the content, educational value, and quality analysis of MS videos about neurorehabilitation on YouTube® using quantitative instruments.
A search was conducted on YouTube®. The first 30 videos that met the inclusion criteria were reviewed. The videos were classified according to the upload source and the content. All videos included in the review were assessed by the DISCERN questionnaire, the JAMA benchmark, the global quality scale (GQS) and the video information and quality index (VIQI).
The mean scores were: 28.3 (±9.33) in DISCERN, 2 (±0.81) in JAMA, 2.57 (±1.22) in GQS, and 11.73 (±4.06) in VIQI. JAMA score statistically significantly differed according to upload source (p = 0.002), video content (p = 0.023) and the speaker (p = 0.002). The DISCERN, JAMA, GQS, and VIQI scores showed significant correlations with each other.
The analyzed videos about neurorehabilitation in people with MS on YouTube® were quite old since the upload, with a moderate duration and number of views, but with a poor quality of the content, educational value, and quality analysis of the videos. Our research showed that there were statistically significant differences in terms of quality, transparency, and reliability of the information, depending on the upload source, video content and the speaker.
YouTube®的使用在患有多发性硬化症（MS）等慢性病的患者中已经普及。这些患者通过观看现有的视频来学习更多关于他们疾病的知识，包括诊断和治疗决策，包括康复。本研究的目的是使用定量工具评估关于多发性硬化症神经康复的 YouTube®上 MS 视频的内容、教育价值和质量分析。
在 YouTube®上进行了搜索。审查了符合纳入标准的前 30 个视频。根据上传源和内容对视频进行分类。对纳入审查的所有视频进行 DISCERN 问卷、JAMA 基准、全球质量量表（GQS）和视频信息和质量指数（VIQI）评估。
平均得分分别为：DISCERN 为 28.3（±9.33），JAMA 为 2（±0.81），GQS 为 2.57（±1.22），VIQI 为 11.73（±4.06）。JAMA 评分根据上传源（p = 0.002）、视频内容（p = 0.023）和演讲者（p = 0.002）存在统计学差异。DISCERN、JAMA、GQS 和 VIQI 评分之间存在显著相关性。
YouTube®上关于多发性硬化症神经康复的分析视频上传时间较长，时长和观看次数适中，但内容、教育价值和视频质量分析较差。我们的研究表明，信息的质量、透明度和可靠性取决于上传源、视频内容和演讲者，存在统计学差异。
