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特殊健康需求儿童和青少年父母的心理健康。

Mental health of parents of children and adolescents who require special health care.

机构信息

Universidade Estadual do Oeste do Paraná, Hospital Universitário do Oeste do Paraná. Cascavel, Paraná, Brazil.

Universidade Estadual do Oeste do Paraná. Foz do Iguaçu, Paraná, Brazil.

出版信息

Rev Bras Enferm. 2024 Jul 29;77(3):e20230457. doi: 10.1590/0034-7167-2023-0457. eCollection 2024.

DOI:10.1590/0034-7167-2023-0457
PMID:39082548
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11290732/
Abstract

OBJECTIVE

To identify the manifestations presented by parents of children and adolescents who require special health attention that can impact their mental health.

METHODS

exploratory, qualitative research, based on the concept of vulnerability, with data collection carried out through interviews with 18 parents of children and adolescents with special health care needs, hospitalized in the pediatric ward of a hospital in Paraná, between May/2017 and May/ 2018. Data analyzed by inductive thematic analysis.

RESULTS

parents experienced situations of vulnerability when providing care at home, with repercussions on their mental health, expressed by manifestations of lack of protection, anxiety and depression.

FINAL CONSIDERATIONS

It is important that health professionals seek to expand actions to promote care and reduce situations that generate threats, insecurities, concerns and damage to the health of parents, which can impact and further weaken care for children and adolescents who need attention especially health.

摘要

目的

识别需要特殊健康关注的儿童和青少年的父母所表现出的可能影响其心理健康的特征。

方法

基于脆弱性概念的探索性定性研究,于 2017 年 5 月至 2018 年 5 月期间,通过对在巴西南部一所医院儿科病房住院的 18 名有特殊健康需求的儿童和青少年的父母进行访谈,收集数据。采用归纳主题分析对数据进行分析。

结果

父母在居家护理时经历了脆弱性的情况,对其心理健康产生了影响,表现为缺乏保护、焦虑和抑郁等特征。

最终结论

卫生专业人员寻求扩大行动以促进护理并减少产生威胁、不安全、担忧和损害父母健康的情况非常重要,这些情况可能会影响并进一步削弱对需要特别健康关注的儿童和青少年的护理。

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2
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JAMA Pediatr. 2022 Jun 1;176(6):e220687. doi: 10.1001/jamapediatrics.2022.0687. Epub 2022 Jun 6.
3
The family of the child with special health care needs and their social relationships.有特殊医疗需求儿童的家庭及其社会关系。
Rev Bras Enferm. 2022 Mar 7;75Suppl 2(Suppl 2):e20210031. doi: 10.1590/0034-7167-2021-0031. eCollection 2022.
4
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J Family Med Prim Care. 2021 Nov;10(11):4205-4211. doi: 10.4103/jfmpc.jfmpc_70_21. Epub 2021 Nov 29.
5
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6
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8
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Int J Equity Health. 2020 Aug 10;19(1):136. doi: 10.1186/s12939-020-01252-x.
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Rev Lat Am Enfermagem. 2020 Jul 1;28:e3308. doi: 10.1590/1518-8345.3520.3308. eCollection 2020.