Jeyakumaran Thuvaraha, Eggiman-Ketter Jordan, Spadzinski Abby, Wolfe Dalton L
Parkwood Institute Research, Lawson Health Research Institute, London, ON, Canada.
Faculty of Health Sciences, School of Health Studies, Western University, London, ON, Canada.
Front Rehabil Sci. 2024 Jul 23;5:1364016. doi: 10.3389/fresc.2024.1364016. eCollection 2024.
Possibilities Project Plus (PPPlus) is a free assistive device (AD) marketplace and research platform for persons with disabilities. The overall aim of PPPlus is to increase access to ADs through an integration of service, research and education. To maximize positive outcomes and reflect community needs a co-design approach informed by guiding principles of Integrated Knowledge Translation (IKT) was adopted, with examination of methods related to Experience Based Co-design. The integrated nature of PPPlus benefits from the use of specific engagement strategies that align with IKT principles to meet project objectives. The extent to which partnership and engagement strategies are specified in the rehabilitation research literature vary greatly and studies that provide information on specific strategies used to operationalize principles are limited. The objective of this manuscript is to provide a description of the co-design approach and the specific strategies that strive to achieve meaningful user engagement. By reflecting on these processes we also report on limitations and strategies for improvement.
The co-design approach is highlighted through specific project activities including a representative governance structure, ongoing environmental scan and iterative Health Equity Impact Assessments (HEIA). The inherent engagement strategies that align with IKT and co-design principles are described.
The most impactful engagement strategies included early engagement of partners throughout all phases, ensuring project relevance across partners through alignment of objectives with complementary aims, using HEIAs to promote equitable outcomes from diverse stakeholders, the representative governance structure beyond individuals with disabilities and caregivers, and the use of experiences and stories to inform development.
This examination of specific strategies related to co-design focused on partnership engagement and informed targets for enhancement of the PPPlus initiative. These include being more intentional in developing a more rigorous process for evaluation that includes an assessment of strategies and their impact-especially as related to partner engagement. In addition, ongoing and enhanced efforts will focus on developing knowledge products that bring to life the most salient experience-based user stories emerging from the environmental scan with these being used to drive distinct co-creation events as well as serve other knowledge mobilization purposes (i.e., supporting policy change).
“可能性计划升级版”(PPPlus)是一个面向残疾人的免费辅助设备(AD)市场及研究平台。PPPlus的总体目标是通过整合服务、研究和教育来增加辅助设备的可及性。为了实现最大程度的积极成果并反映社区需求,采用了一种基于综合知识转化(IKT)指导原则的协同设计方法,并对基于经验的协同设计相关方法进行了研究。PPPlus的综合性得益于使用与IKT原则相一致的特定参与策略,以实现项目目标。康复研究文献中对伙伴关系和参与策略的具体规定程度差异很大,提供用于实施原则的具体策略信息的研究有限。本文的目的是描述协同设计方法以及旨在实现有意义的用户参与的具体策略。通过反思这些过程,我们还报告了局限性和改进策略。
通过特定的项目活动突出协同设计方法,包括具有代表性的治理结构、持续的环境扫描和迭代的健康公平影响评估(HEIA)。描述了与IKT和协同设计原则相一致的内在参与策略。
最具影响力的参与策略包括在所有阶段尽早让伙伴参与,通过使目标与互补目标保持一致来确保项目对所有伙伴的相关性,利用健康公平影响评估促进不同利益相关者的公平成果,超越残疾人和照顾者的代表性治理结构,以及利用经验和故事为发展提供信息。
对与协同设计相关的具体策略的此次研究聚焦于伙伴关系参与,并为改进PPPlus计划提供了目标。这些目标包括更有针对性地制定更严格的评估流程,其中包括对策略及其影响的评估——特别是与伙伴参与相关的评估。此外,持续且加强的努力将集中于开发知识产品,这些产品将呈现环境扫描中最突出的基于经验的用户故事,用于推动不同的共同创造活动以及服务于其他知识传播目的(即支持政策变革)。