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[译文]罗莎生活质量量表西班牙语版的跨文化验证。

[Translated article] Cross-Cultural Validation of the RosaQoL Scale in Spanish Language.

机构信息

Servicio de Dermatología, Hospital Universitario Sagrat Cor, Barcelona, Spain.

Servicio de Dermatología, Hospital Universitario, A Coruña, Spain.

出版信息

Actas Dermosifiliogr. 2024 Oct;115(9):T858-T866. doi: 10.1016/j.ad.2024.02.035. Epub 2024 Aug 5.

Abstract

INTRODUCTION

Rosacea is a chronic disease negatively impacting the patients' quality of life and mental health. The Rosacea Quality of Life (RosaQoL) scale could be a useful tool to monitor patients while on therapy vs rosacea, as it measures the impact on quality of life and helps individualize treatment to meet the patients' needs. RosaQoL is a validated scale that can be completed within a few minutes.

MATERIALS AND METHODS

The original scale was translated and back translated by 2 native translators, with input from an expert committee when necessary. This version was tested on 21 patients to ensure proper understanding. Psychometric characteristics and validity were determined using various measures (sensitivity and specificity via ROC curve and internal consistency via Cronbach's alpha). The correlation between RosaQoL and SF-12 scales was assessed using Pearson correlation coefficients.

RESULTS

A total of 531 participants responded to the scale (481 with rosacea and 50 controls). The scale demonstrated excellent sensitivity and specificity (ROC curve, 0.96; 95%CI, 0.92-0.99) and high internal consistency (Cronbach's alpha, 0.96). RosaQoL correlated with SF-12. A higher score on the RosaQoL scale was associated with worse quality of life in all dimensions of the SF-12 scale.

CONCLUSIONS

The Spanish version of the RosaQoL scale exhibits psychometric characteristics, which are similar to the original scale. Also, the RosaQoL scale is useful to assess the quality of life of patients with rosacea.

摘要

简介

酒渣鼻是一种慢性疾病,会对患者的生活质量和心理健康产生负面影响。酒渣鼻生活质量(RosaQoL)量表可以作为一种有用的工具,在治疗过程中监测患者,因为它可以衡量对生活质量的影响,并帮助根据患者的需求进行个体化治疗。RosaQoL 是一种经过验证的量表,可在几分钟内完成。

材料和方法

原始量表由 2 名母语为英语的翻译人员翻译和回译,并在必要时由专家委员会提供意见。该版本在 21 名患者中进行了测试,以确保正确理解。使用各种措施(通过 ROC 曲线测量敏感性和特异性,通过 Cronbach's alpha 测量内部一致性)确定心理计量学特征和有效性。使用 Pearson 相关系数评估 RosaQoL 与 SF-12 量表之间的相关性。

结果

共有 531 名参与者对量表做出了回应(481 名患有酒渣鼻,50 名对照组)。该量表表现出良好的敏感性和特异性(ROC 曲线,0.96;95%CI,0.92-0.99)和高度的内部一致性(Cronbach's alpha,0.96)。RosaQoL 与 SF-12 相关。RosaQoL 量表得分越高,与 SF-12 量表所有维度的生活质量越差相关。

结论

RosaQoL 量表的西班牙语版本表现出与原始量表相似的心理计量学特征。此外,RosaQoL 量表可用于评估酒渣鼻患者的生活质量。

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