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一项关于原住民慢性阻塞性肺疾病医疗保健经历的定性研究。

A Qualitative Study of Aboriginal Peoples' Health Care Experiences With Chronic Obstructive Pulmonary Disease.

作者信息

Meharg David P, Dennis Sarah M, McNab Justin, Gwynne Kylie G, Jenkins Christine R, Maguire Graeme P, Jan Stephen, Shaw Tim, McKeough Zoe, Rambaldini Boe, Lee Vanessa, McCowen Debbie, Newman Jamie, Longbottom Hayley, Eades Sandra, Alison Jennifer A

机构信息

Faculty of Medicine and Health, Sydney School of Health Sciences, The University of Sydney, Camperdown, NSW, Australia.

Poche Centre for Indigenous Health, The University of Sydney, Camperdown, NSW, Australia.

出版信息

Qual Health Res. 2025 Feb;35(2):216-233. doi: 10.1177/10497323241259891. Epub 2024 Aug 8.

Abstract

Aboriginal Australians experience a high prevalence of chronic obstructive pulmonary disease (COPD), with high rates of potentially preventable hospitalisations. However, little is known about Aboriginal peoples' experiences of living with COPD and how they navigate health care systems. This study used thematic analysis and Aboriginal methodology to explore Aboriginal peoples' lived experiences of COPD, their health care journey from receiving a diagnosis of COPD to the clinical management, and the impact of COPD on their daily lives. We conducted in-depth semi-structured interviews over a 6-month period with 18 Aboriginal adults diagnosed with COPD from four Aboriginal Community Controlled Health Services (ACCHS) in New South Wales, Australia. Reflexive thematic analysis was employed to ensure rigour. The findings revealed deeply personal and reflective stories shaped by historical, social, and cultural realities of Aboriginal peoples living with COPD. Four themes were identified characterising their experiences. Based on the findings, the following guidance is provided on future COPD care for Aboriginal peoples: Better alignment of existing COPD management with Aboriginal peoples' cultural contexts and perspectives to improve access to culturally safe care; Increased funding for ACCHS to enhance COPD management, such as early detection through case finding and access to ACCHS-led pulmonary rehabilitation; Engaging family members in COPD management and providing culturally centred COPD education that facilitates discussions and builds health literacy and self-management skills; Implementing health promotion initiatives to increase awareness and counteract fear and shame to improve early COPD detection.

摘要

澳大利亚原住民慢性阻塞性肺疾病(COPD)的患病率很高,潜在可预防的住院率也很高。然而,对于原住民患慢性阻塞性肺疾病的生活经历以及他们如何在医疗保健系统中就医,人们知之甚少。本研究采用主题分析和原住民方法,探讨原住民患慢性阻塞性肺疾病的生活经历、从被诊断为慢性阻塞性肺疾病到临床管理的就医过程,以及慢性阻塞性肺疾病对他们日常生活的影响。我们在6个月的时间里,对来自澳大利亚新南威尔士州四个原住民社区控制卫生服务机构(ACCHS)的18名被诊断患有慢性阻塞性肺疾病的原住民成年人进行了深入的半结构化访谈。采用反思性主题分析以确保严谨性。研究结果揭示了深受原住民患慢性阻塞性肺疾病的历史、社会和文化现实影响的个人化且具反思性的故事。确定了四个主题来描述他们的经历。基于这些研究结果,为原住民未来的慢性阻塞性肺疾病护理提供了以下指导:使现有的慢性阻塞性肺疾病管理更好地与原住民的文化背景和观点相契合,以改善获得文化安全护理的机会;增加对原住民社区控制卫生服务机构的资金投入,以加强慢性阻塞性肺疾病管理,如通过病例发现进行早期检测以及获得由原住民社区控制卫生服务机构主导的肺康复治疗;让家庭成员参与慢性阻塞性肺疾病管理,并提供以文化为中心的慢性阻塞性肺疾病教育,以促进讨论并培养健康素养和自我管理技能;实施健康促进举措,以提高认识并消除恐惧和羞耻感,从而改善慢性阻塞性肺疾病的早期检测。

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