Carey Lynn K, Nicholson Bonnie C, Fox Robert A
Marquette University, Milwaukee, WI 53201-1881, USA.
J Pediatr Nurs. 2002 Jun;17(3):174-83. doi: 10.1053/jpdn.2002.124111.
The purpose of this study was to compare the early child-rearing practices between mothers of young children with congenital heart disease (CHD) and mothers of healthy children. In addition, maternal stress, parental developmental expectations, and the early behavioral and emotional development of their children were explored. Maccoby's (1992) socialization theory emphasizing the reciprocal nature of mother-child interactions provided the framework for this study. Findings from quantitative self-report measures and videotaped parent-child interactions showed a remarkable similarity between mothers of children with CHD and mothers of healthy children. In contrast, qualitative data revealed important differences with mothers of CHD children reporting high levels of vigilance with their children. The important role of promoting the principle of normalization among mothers of children with CHD and ensuring a sufficient support system is discussed.
本研究的目的是比较患有先天性心脏病（CHD）幼儿的母亲与健康儿童的母亲在早期育儿方式上的差异。此外，还探讨了母亲的压力、父母对孩子发展的期望以及孩子早期的行为和情感发展。麦科比（1992）强调母子互动互惠性质的社会化理论为本研究提供了框架。定量自我报告测量和亲子互动录像的结果显示，患有CHD儿童的母亲与健康儿童的母亲之间存在显著相似性。相比之下，定性数据揭示了重要差异，患有CHD儿童的母亲报告称对孩子高度警惕。文中讨论了在患有CHD儿童的母亲中推广正常化原则以及确保充足支持系统的重要作用。
