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关于母亲对自闭症儿童早期发育差异看法的调查。

Examination of mother's opinions on developmental differences of children with autism in early period.

作者信息

Boğa Ebru, Arslan Rukiye, Tarkoçin Suna, Temiz Ahmet, Sağlam Mehmet

机构信息

Child Development, Dicle Universitesi, Sur/Diyarbakır, Turkey.

Child Development, Batman Universitesi, Merkez/Batman, Turkey.

出版信息

Int J Dev Disabil. 2022 Dec 10;70(5):865-878. doi: 10.1080/20473869.2022.2152167. eCollection 2024.

Abstract

Early diagnosis is extremely important for children with autism spectrum disorder (ASD), as other children having developmental disabilities. In early diagnosis, which is one of the most important elements of the treatment process, parents have a special place with different factors. Considering the importance of parents in early diagnosis, the aim of the study is to examine the opinions of the mother on early developmental differences in children with autism. The research is a case study designed in a qualitative research model. Accordingly, an interview form was developed by the researchers and data were collected in the scanning model in the first step of the study. In the second step of the study, data were obtained by using the semi-structured interview method, which is one of the qualitative research methods. In the study group of the research, 110 mothers were interviewed, whom were selected via purposeful sampling, and 87 mothers, who gave full answers to the questions, were included in the study. The data obtained were subjected to descriptive and thematic analysis. As a result of the study, it was found that children diagnosed with autism and children with development showed similar developmental characteristics during pregnancy and after birth. It was observed that mothers with a child diagnosed with autism have the awareness on the suspicion of autism in their children when they are between 18 and 24 months and 31 and 36 months, and they experienced problems in breast-feeding and falling asleep.

摘要

对于患有自闭症谱系障碍(ASD)的儿童以及其他发育障碍儿童来说,早期诊断极其重要。在早期诊断这一治疗过程中最重要的环节之一,父母因各种因素有着特殊的地位。考虑到父母在早期诊断中的重要性,本研究的目的是考察母亲们对于自闭症儿童早期发育差异的看法。该研究是一项采用定性研究模型设计的案例研究。据此,研究人员编制了一份访谈表格,并在研究的第一步以扫描模式收集数据。在研究的第二步,通过使用定性研究方法之一的半结构化访谈法获取数据。在该研究的样本组中,对110位通过目的抽样选取的母亲进行了访谈,其中87位对问题给出完整回答的母亲被纳入研究。对所获得的数据进行了描述性和主题性分析。研究结果发现,被诊断为自闭症的儿童与发育正常儿童在孕期及出生后的发育特征相似。观察到孩子被诊断为自闭症的母亲在孩子18至24个月以及31至36个月时就意识到孩子可能患有自闭症,并且她们在母乳喂养和哄孩子入睡方面遇到过问题。

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本文引用的文献

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Predicting Parent Reactions at Diagnostic Disclosure Sessions for Autism.预测自闭症诊断披露会议上的家长反应。
J Autism Dev Disord. 2021 Oct;51(10):3533-3546. doi: 10.1007/s10803-020-04817-5. Epub 2021 Jan 2.
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The importance of attachment in infant and influencing factors.依恋在婴儿期的重要性及影响因素。
Turk Pediatri Ars. 2019 Jul 11;54(2):76-81. doi: 10.14744/TurkPediatriArs.2018.80269. eCollection 2019.
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What is Qualitative in Qualitative Research.定性研究中的“定性”是什么。
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