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针对0至6岁自闭症儿童家长的电子健康家庭干预措施:一项范围综述

E-Health Family Interventions for Parents of Children With Autism Aged 0-6 Years: A Scoping Review.

作者信息

Shang Chuang, Xie Wei, Zeng Jinpeng, Osman Nour, Sun Caihong, Zou Mingyang, Wang Jianli, Wu Lijie

机构信息

Department of Children's and Adolescent Health, Public Health College, Harbin Medical University, Harbin, China.

Department of Community Health and Epidemiology, Centre for Clinical Research, Halifax, NS, Canada.

出版信息

Psychiatry Investig. 2024 Sep;21(9):925-937. doi: 10.30773/pi.2023.0399. Epub 2024 Aug 20.

DOI:10.30773/pi.2023.0399
PMID:39155555
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11421919/
Abstract

OBJECTIVE

Autism spectrum disorder (ASD) is a neurodevelopmental disorder with onset in infancy. Early intervention is critical to improve the prognosis for these children. E-health interventions have tremendous potential. This review aimed to determine the status and effectiveness of family interventions for parents of children aged 0-6 years with ASD in the context of e-health.

METHODS

The review methodology was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews. PubMed, Web of Science, and China National Knowledge Infrastructure were searched from inception to June 2022. The searches were limited to children with ASD of the age range between 0 and 6 years. We collated the available information and used descriptive statistics to analyze the synthesized data.

RESULTS

Our initial search identified 3,672 articles, of which 30 studies met the inclusion criteria. The 30 articles selected were released between 2012 and 2022. All articles are in English. Most articles reviewed were from high-income countries (27/30, 90.0%), especially from the United States (16/30, 53.3%). Four major themes emerged from the 30 studies that matched the inclusion criteria, as follows: 1) type of e-health interventions, 2) duration of interventions, 3) clinical aspects of e-health interventions, and 4) evidence for intervention effectiveness, looking into the positive, negative, and mixed findings of previous studies.

CONCLUSION

These findings suggest that a wide variety of e-health interventions may actually help support both children with ASD aged 0-6 years and their parents.

摘要

目的

自闭症谱系障碍(ASD)是一种始于婴儿期的神经发育障碍。早期干预对于改善这些儿童的预后至关重要。电子健康干预具有巨大潜力。本综述旨在确定在电子健康背景下针对0至6岁ASD儿童家长的家庭干预的现状和效果。

方法

本综述方法遵循系统评价和Meta分析扩展版的首选报告项目(PRISMA-ScR)。从数据库建库至2022年6月,检索了PubMed、科学网和中国知网。检索限于年龄在0至6岁的ASD儿童。我们整理了可用信息,并使用描述性统计分析综合数据。

结果

我们的初步检索识别出3672篇文章,其中30项研究符合纳入标准。所选的30篇文章发表于2012年至2022年之间。所有文章均为英文。大多数综述文章来自高收入国家(27/30,90.0%),尤其是美国(16/30,53.3%)。30项符合纳入标准的研究中出现了四个主要主题,如下:1)电子健康干预类型,2)干预持续时间,3)电子健康干预的临床方面,4)干预效果的证据,审视以往研究的阳性、阴性和混合结果。

结论

这些发现表明,各种各样的电子健康干预实际上可能有助于支持0至6岁的ASD儿童及其家长。

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本文引用的文献

1
Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020.2020 年,美国 11 个监测点自闭症和发育障碍监测网络 8 岁儿童自闭症谱系障碍的流行率和特征。
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Mental health issues in parents of children with autism spectrum disorder: A multi-time-point study related to COVID-19 pandemic.
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Autism Res. 2022 Dec;15(12):2346-2358. doi: 10.1002/aur.2836. Epub 2022 Oct 20.
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Promotion and implementation effectiveness of World Health Organization's Caregiver Skills Training program in Taiwan.世界卫生组织照顾者技能培训计划在台湾的推广及实施成效
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mHealth apps delivering early intervention to support parents of children with autism: a scoping review protocol.移动医疗应用程序为自闭症儿童的父母提供早期干预支持:范围综述方案。
BMJ Paediatr Open. 2022 May;6(1). doi: 10.1136/bmjpo-2021-001358.
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Improvements for Therapeutic Intervention from the Use of Web Applications and Machine Learning Techniques in Different Affectations in Children Aged 0-6 Years.利用网络应用程序和机器学习技术改善 0-6 岁儿童不同疾病的治疗干预。
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Coaching While Waiting for Autism Spectrum Disorder Assessment: A Pilot Feasibility Study for a Randomized Controlled Trial on Occupational Performance Coaching and Service Navigation.等待自闭症谱系障碍评估期间的指导:一项关于职业表现指导与服务导航随机对照试验的试点可行性研究
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The Perceived Benefits of Digital Interventions for Behavioral Health: Qualitative Interview Study.数字干预措施对行为健康的感知益处:定性访谈研究。
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Combined social communication therapy at home and in education for young autistic children in England (PACT-G): a parallel, single-blind, randomised controlled trial.英格兰针对自闭症儿童的家庭与教育联合社交沟通疗法(PACT-G):一项平行、单盲、随机对照试验。
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The Association between Depression and Perceived Stress among Parents of Autistic and Non-Autistic Children-The Role of Loneliness.自闭症儿童与非自闭症儿童父母的抑郁与压力知觉的关系:孤独感的作用。
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