Canatan Ahmed N
School of Medicine, Marmara University, Istanbul, TUR.
Cureus. 2024 Jul 17;16(7):e64704. doi: 10.7759/cureus.64704. eCollection 2024 Jul.
Introduction Fibromyalgia, characterized by chronic musculoskeletal pain and associated symptoms, poses significant challenges in diagnosis and management. While social media platforms like TikTok have emerged as popular sources of health information, their variable content quality necessitates critical evaluation. This study aimed to assess the quality and reliability of TikTok videos related to fibromyalgia, thereby enhancing the understanding of their impact on patient education and self-management. Methods A cross-sectional observational study was conducted in June 2024, which analyzed 150 TikTok videos using search terms like "Fibromyalgia", "Fibromyalgia Symptoms", and "Fibromyalgia Treatment". Videos were evaluated for inclusion based on relevance and language (English), by employing the Global Quality Scale (GQS) and Quality Criteria for Consumer Health Information (DISCERN) score for assessment. Statistical analysis was performed by using IBM SPSS Statistics v21.0 (IBM Corp., Armonk, NY). The Kruskall-Wallis test was employed, and a p-value less than 0.05 was deemed statistically significant. Results Of the 150 videos initially reviewed, 96 (64%) met the inclusion criteria. Content categories included disease description (34, 35.42%), symptoms (81, 84.38%), management (64, 66.67%), and personal experiences (63, 65.63%). The videos were uploaded by doctors (8, 8.33%), patients (63, 65.63%), healthcare workers ( 7, 7.29%), and others (18, 18.75%). Mean GQS scores varied significantly by uploader type: doctors (4.63 ± 0.52), healthcare workers (3.43 ± 0.79), patients (2.37 ± 0.81), and others (2.11 ± 0.47) (p<0.001). DISCERN scores followed a similar trend: doctors (3.88 ± 0.64), healthcare workers (2.14 ± 1.46), patients (1.08 ± 0.27), and others (1.61 ± 0.50) (p<0.001). Conclusions TikTok serves as a pivotal platform for fibromyalgia-related discourse, predominantly shaped by patient-generated content. However, even though it provides insights into symptoms and management strategies, gaps exist in comprehensive medical guidance and preventive measures. The study underscores the critical role of healthcare professionals in enhancing content reliability and educational value on social media. Future research should explore cultural and linguistic diversity to broaden the accessibility and relevance of health information on platforms like TikTok.
引言
纤维肌痛以慢性肌肉骨骼疼痛及相关症状为特征,在诊断和管理方面带来了重大挑战。虽然TikTok等社交媒体平台已成为健康信息的热门来源,但其内容质量参差不齐,需要进行严格评估。本研究旨在评估TikTok上与纤维肌痛相关视频的质量和可靠性,从而加深对其对患者教育和自我管理影响的理解。
方法
2024年6月进行了一项横断面观察性研究,使用“纤维肌痛”“纤维肌痛症状”和“纤维肌痛治疗”等搜索词分析了150条TikTok视频。通过采用全球质量量表(GQS)和消费者健康信息质量标准(DISCERN)评分,根据相关性和语言(英语)对视频进行纳入评估。使用IBM SPSS Statistics v21.0(IBM公司,纽约州阿蒙克)进行统计分析。采用Kruskal-Wallis检验,p值小于0.05被认为具有统计学意义。
结果
在最初审查的150条视频中,96条(64%)符合纳入标准。内容类别包括疾病描述(34条,35.42%)、症状(81条,84.38%)、管理(64条,66.67%)和个人经历(63条,65.63%)。视频由医生(8条,8.33%)、患者(63条,65.63%)、医护人员(7条,7.29%)和其他人(18条,18.75%)上传。平均GQS评分因上传者类型而异:医生(4.63±0.52)、医护人员(3.43±0.79)、患者(2.37±0.81)和其他人(2.11±0.47)(p<0.001)。DISCERN评分也呈现类似趋势:医生(3.88±0.64)、医护人员(2.14±1.46)、患者(1.08±0.27)和其他人(1.61±0.50)(p<0.001)。
结论
TikTok是纤维肌痛相关讨论的关键平台,主要由患者生成内容主导。然而,尽管它提供了症状和管理策略方面的见解,但在全面的医学指导和预防措施方面仍存在差距。该研究强调了医护人员在提高社交媒体上内容可靠性和教育价值方面的关键作用。未来的研究应探索文化和语言多样性,以扩大TikTok等平台上健康信息的可及性和相关性。