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MoveONParkinson:开发个性化激励方案以管理帕金森病。

MoveONParkinson: developing a personalized motivational solution for Parkinson's disease management.

机构信息

Escola Superior de Saúde, Instituto Politécnico de Setúbal, Setúbal, Portugal.

Escola Superior de Tecnologia, Instituto Politécnico de Setúbal, Setúbal, Portugal.

出版信息

Front Public Health. 2024 Aug 19;12:1420171. doi: 10.3389/fpubh.2024.1420171. eCollection 2024.

Abstract

INTRODUCTION

Despite the effectiveness of exercise-based interventions on symptom management and disease progression, many people with Parkinson's Disease (PwPD) do not exercise regularly. In line with the ubiquitous use of digital health technology, the MoveONParkinson digital solution was developed, comprising a Web Platform and a Mobile App with a Conversational Agent (CA). The interface features were designed based on the principles of Social Cognitive Theory with the goal of fostering behavior change in PwPD for sustained exercise participation and improved disease management.

METHODS

Using a mixed methods approach, this study aimed to collect feedback, assess the acceptability of the Mobile App and the Web Platform, and evaluate the usability of the latter. Quantitative data, which included questionnaire responses and the System Usability Scale (SUS) scores, were analyzed using descriptive statistics, heatmaps, and correlation matrices. Qualitative data, comprising semi-structured and thinking-aloud interview transcripts, were subjected to an inductive thematic analysis. A total of 28 participants were involved in the study, comprising 20 physiotherapists (average age: 34.50 ± 10.4), and eight PwPD (average age: 65.75 ± 8.63; mean Hoehn & Yahr: 2.0 (± 0.76)).

RESULTS

Three main themes emerged from the thematic analysis of the interviews, namely: Self-management (Theme 1), User Engagement (Theme 2), and Recommendations (Theme 3). The assessment of the Mobile App and the CA (mean score: 4.42/5.0 ± 0.79) suggests that PwPD were able to navigate this interface without notable difficulties. The mean SUS score of 79.50 (± 12.40%) with a 95% confidence interval ranging from 73.70 to 85.30, reveal good usability.

DISCUSSION

These findings indicate a high level of acceptability of the MoveONParkinson digital solution, serving as a foundation for assessing its impact on exercise engagement and, subsequently, its influence on symptom management and quality of life of PwPD.

摘要

简介

尽管基于运动的干预措施在症状管理和疾病进展方面非常有效,但许多帕金森病(PD)患者并不经常运动。为了顺应数字健康技术的普及应用,我们开发了 MoveONParkinson 数字解决方案,包括一个网络平台和一个具有对话代理(CA)的移动应用程序。该界面的功能设计基于社会认知理论的原则,旨在促进 PD 患者改变行为,以持续参与运动并改善疾病管理。

方法

本研究采用混合方法,旨在收集反馈意见,评估移动应用程序和网络平台的可接受性,并评估后者的可用性。定量数据包括问卷回答和系统可用性量表(SUS)分数,采用描述性统计、热点图和相关矩阵进行分析。定性数据包括半结构化和出声思维访谈记录,进行了归纳主题分析。共有 28 名参与者参与了这项研究,包括 20 名物理治疗师(平均年龄:34.50±10.4 岁)和 8 名 PD 患者(平均年龄:65.75±8.63 岁;平均 Hoehn & Yahr:2.0(±0.76))。

结果

访谈的主题分析得出了三个主要主题,即:自我管理(主题 1)、用户参与(主题 2)和建议(主题 3)。对移动应用程序和 CA 的评估(平均得分为 4.42/5.0±0.79)表明,PD 患者能够在没有明显困难的情况下浏览该界面。SUS 的平均得分为 79.50(±12.40%),95%置信区间为 73.70 至 85.30,表明具有良好的可用性。

讨论

这些发现表明 MoveONParkinson 数字解决方案具有很高的可接受性,为评估其对运动参与的影响以及随后对 PD 患者症状管理和生活质量的影响奠定了基础。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/cef6/11366595/309757647663/fpubh-12-1420171-g001.jpg

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