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少即是多:探寻看待“这个患者”而非“这样的患者”的意义

Practising Less is More: An Exploration of What it Means to See "This Patient" Not a "Patient Like This".

作者信息

Bobbio M, Chiarlo M, Arcadi P, Kidd E

机构信息

Slow Medicine Italia, Via Pietra del Gallo 45, 10025, Pino Torinese, (TO), Italy.

Saint John Bosco Hospital, Ospedale San Giovanni Bosco, Turin, Italy.

出版信息

J Bioeth Inq. 2024 Sep 9. doi: 10.1007/s11673-024-10378-4.

Abstract

In the last decade literature focused on a "less is more" approach has been primarily represented by clinical cases describing the excesses of an aggressive, redundant, non-personalized, and non-respectful medicine. Most of these articles focus on a "more is worse" approach and centre around the downstream negative consequences of medical overuse. Having identified a gap in the literature on the experience and practice of less, rather than the harms of excess, we carried out an exploratory qualitative study into how a "less is more" approach works in practice. A hermeneutic phenomenological approach was adopted to allow us to examine the realm of lived experience as a valid data source and as a path from which to understand a "less is more" approach "from the bedside." A Phenomenology of Practice was chosen as a more specific frame for this research because of its added focus on action and practical application in professional settings. Seventy stories written by physicians, patients, nurses, caregivers, and other health professionals have been received and analysed. These stories were gathered as part of a project called "Slow Stories" which aimed to collect clinical cases that have been positively resolved by adopting a "less is more" approach to patient care. After having conducted an in-depth analysis, separately and as a group, the researchers identified five key phenomenological themes; Time to relate is time to heal; Doing more does not mean doing better; Settings for a slow medicine; Slow care at the end of life; and Personalized vs. standardized treatment. Each of these themes offers insights into how a "less is more" approach can be used in practice and illustrates how a "less is more" strategy can play a significant role in positively resolving certain clinical cases.

摘要

在过去十年中,专注于“少即是多”方法的文献主要以临床病例为代表,这些病例描述了激进、冗余、非个性化和不尊重患者的医疗行为的过度之处。这些文章大多聚焦于“多即更糟”的方法,并围绕医疗过度使用的下游负面后果展开。在发现关于“少”的经验和实践而非过度的危害的文献存在空白后,我们对“少即是多”方法在实践中的运作方式进行了探索性定性研究。我们采用了解释学现象学方法,以便将生活经验领域作为有效的数据源进行考察,并将其作为从“床边”理解“少即是多”方法的途径。由于其更侧重于专业环境中的行动和实际应用,因此选择了实践现象学作为本研究更具体的框架。我们已收到并分析了由医生、患者、护士、护理人员和其他卫生专业人员撰写的70个故事。这些故事是作为一个名为“慢故事”的项目的一部分收集的,该项目旨在收集通过采用“少即是多”的患者护理方法而得到积极解决的临床病例。在分别和作为一个小组进行深入分析后,研究人员确定了五个关键的现象学主题:建立关系的时间就是治愈的时间;做得更多并不意味着做得更好;慢医学的环境;临终时的慢护理;以及个性化与标准化治疗。这些主题中的每一个都为如何在实践中运用“少即是多”方法提供了见解,并说明了“少即是多”策略如何能够在积极解决某些临床病例中发挥重要作用。

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