Roth John, Roth Oam Cathy, Goh Anita My
Professionals with Alzheimer's and related diseases (PALZ), Australia.
The University of Melbourne, Australia; National Ageing Research Institute, Australia.
Dementia (London). 2025 Jan;24(1):14-22. doi: 10.1177/14713012241285577. Epub 2024 Sep 18.
The lived experience of dementia, the views of the caregiver, and the pursuit of scientific understanding by researchers need to converge for holistic and collaborative action to improve dementia research. However, there often exist silos and division between these groups, which limits relevance and innovation. This paper aims to bridge this divide by offering a tripartite exploration of dementia research through three distinct, yet interconnected, lenses of a person living with the disease, their dedicated carer, and a researcher actively engaged in dementia research. This collaborative endeavour highlights the need to move beyond the traditional (and outdated) dichotomy of "subject and expert". By weaving together personal perspectives and insights in a multi-voiced approach, we highlight the opportunities and potential that can emerge from working in partnership and using a relational approach.
痴呆症患者的生活体验、护理者的观点以及研究人员对科学理解的追求，需要相互融合，以便采取全面且协作的行动来改善痴呆症研究。然而，这些群体之间常常存在隔阂与分歧，这限制了研究的相关性与创新性。本文旨在通过从三个不同但相互关联的视角，即痴呆症患者、其专职护理者以及积极从事痴呆症研究的研究人员，对痴呆症研究进行三方探索，来弥合这一差距。这一合作努力凸显了超越传统（且过时）的“主体与专家”二分法的必要性。通过以多声部的方式将个人观点和见解交织在一起，我们强调了通过合作和采用关系性方法可能产生的机遇和潜力。
