Prog Community Health Partnersh. 2024;18(3):389-396.
Research funding has been criticized as biased against novel initiatives and lacking diversity, which leads to further disparities. Patient and stakeholder engagement could support research that goes beyond traditional paradigms and increases diversity. However, best practices to engage stakeholders in research, including funding decisions, continue to be developed. We report on the implementation of stakeholder input in two federally funded initiatives, one that seeks to advance research reducing disparities, and the other seeks to advance deprescribing research. Overall, the review process includes stakeholders as decision makers and supports their efforts through group discussion and other activities. Reconciling stakeholder input that may differ from scientific peer review is a challenge within the decision for funding. Lessons learned include balancing stakeholder and scientific assessments and including guidance on stakeholder engagement to grant awardees.
研究资金一直备受诟病，被指责存在偏见，不利于新举措的开展，也缺乏多样性，从而导致进一步的不平等。患者和利益相关者的参与可以支持超越传统模式和增加多样性的研究。然而，利益相关者参与研究（包括资助决策）的最佳实践仍在不断发展。我们报告了在两个联邦资助的倡议中实施利益相关者投入的情况，一个旨在推进减少差异的研究，另一个旨在推进减少处方研究。总体而言，审查过程将利益相关者作为决策者纳入其中，并通过小组讨论和其他活动支持他们的工作。在资助决策中，协调可能与科学同行评审不同的利益相关者意见是一个挑战。吸取的经验教训包括平衡利益相关者和科学评估，并为受资助者提供关于利益相关者参与的指导。
