• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

患有神经发育障碍儿童的照顾者的生活质量、应对策略及社会心理支持状况:一项来自孟加拉国的横断面研究

Quality of Life, Coping Strategies, and Psychosocial Support Status of Caregivers Having Children With Neurodevelopmental Disabilities: A Cross-Sectional Study From Bangladesh.

作者信息

Tasnim Anika, Salwa Marium, Islam Sharmin, Khan Md Maruf Haque, Islam Mohammad Tanvir, Ratan Zubair Ahmed, Towhid Muhammad Ibrahim Ibne, Al Mamun Mohammad Abdullah, Amin Md Robed, Haque M Atiqul

机构信息

Department of Public Health and Informatics, Bangabandhu Sheikh Mujib Medical University, Dhaka, BGD.

Department of Internal Medicine, Bangabandhu Sheikh Mujib Medical University, Dhaka, BGD.

出版信息

Cureus. 2024 Sep 4;16(9):e68640. doi: 10.7759/cureus.68640. eCollection 2024 Sep.

DOI:10.7759/cureus.68640
PMID:39371714
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11451428/
Abstract

Background Although caregiving is considered a normal phenomenon for parents, delivering care to a child with neurodevelopmental disabilities can be taxing and disastrously impact parents' quality of life (QoL). This study explored the relationship between QoL, coping strategies, and psychosocial support status of caregivers of children with neurodevelopmental disabilities. Methodology This cross-sectional study included 906 caregivers of children having neurodevelopmental disabilities utilizing the World Health Organization Quality of Life Brief and Perceived Stress Scale. A tailored questionnaire gauged coping strategies and psychosocial support. Linear regression was used to identify significant contributors. Results Most caregivers (78.8%) experienced a moderate level of stress, and their QoL scores were 14.4 (SD = 2.5) for physical health, 12.0 (SD = 2.4) for psychological health, 14.6 (SD = 1.9) for social relationships, and 12.1 (SD = 2.1) for the environment. Mothers had the lowest QoL of all caregivers. Negative influences on QoL encompassed caregiver and child age, perceived stress, and lower socioeconomic status. A higher coping score positively predicted a high health-related QoL score. Gender differences were observed in psychosocial support sources. Conclusions The study underscores the need for policymaking considering findings to develop psychosocial intervention programs for enhancing the QoL of caregivers of children with neurodevelopmental disabilities.

摘要

背景 尽管照顾孩子对父母来说被视为一种正常现象,但照顾患有神经发育障碍的孩子可能会让人疲惫不堪,并对父母的生活质量产生灾难性影响。本研究探讨了神经发育障碍儿童照顾者的生活质量、应对策略和心理社会支持状况之间的关系。

方法 这项横断面研究纳入了906名神经发育障碍儿童的照顾者,他们使用了世界卫生组织生活质量简表和感知压力量表。一份量身定制的问卷评估了应对策略和心理社会支持。采用线性回归来确定重要的影响因素。

结果 大多数照顾者(78.8%)经历了中度压力,他们在身体健康方面的生活质量得分为14.4(标准差=2.5),心理健康方面为12.0(标准差=2.4),社会关系方面为14.6(标准差=1.9),环境方面为12.1(标准差=2.1)。在所有照顾者中,母亲的生活质量最低。对生活质量的负面影响包括照顾者和孩子的年龄、感知压力以及较低的社会经济地位。较高的应对得分能正向预测较高的与健康相关的生活质量得分。在心理社会支持来源方面观察到了性别差异。

结论 该研究强调,政策制定需要考虑研究结果,以制定心理社会干预项目,提高神经发育障碍儿童照顾者的生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6831/11451428/adcb26e7ad1c/cureus-0016-00000068640-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6831/11451428/adcb26e7ad1c/cureus-0016-00000068640-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6831/11451428/adcb26e7ad1c/cureus-0016-00000068640-i01.jpg

相似文献

1
Quality of Life, Coping Strategies, and Psychosocial Support Status of Caregivers Having Children With Neurodevelopmental Disabilities: A Cross-Sectional Study From Bangladesh.患有神经发育障碍儿童的照顾者的生活质量、应对策略及社会心理支持状况:一项来自孟加拉国的横断面研究
Cureus. 2024 Sep 4;16(9):e68640. doi: 10.7759/cureus.68640. eCollection 2024 Sep.
2
Perceived Social Support and Quality of Life of Children with and without Developmental Disabilities and Their Caregivers during the COVID-19 Pandemic in Brazil: A Cross-Sectional Study.新冠肺炎疫情期间巴西有和无发育障碍儿童及其照顾者的感知社会支持和生活质量:一项横断面研究。
Int J Environ Res Public Health. 2023 Mar 2;20(5):4449. doi: 10.3390/ijerph20054449.
3
Quality of life and associated factors among primary caregivers of children and adolescents with neurodevelopmental disorders attending public hospitals in Addis Ababa, Ethiopia: a cross-sectional study.埃塞俄比亚亚的斯亚贝巴公立医院中患有神经发育障碍的儿童和青少年的主要照顾者的生活质量及相关因素:一项横断面研究。
Int Health. 2025 May 1;17(3):270-281. doi: 10.1093/inthealth/ihae055.
4
A systematic review of the association between coping strategies and quality of life among caregivers of children with chronic illness and/or disability.应对策略与慢性病和/或残疾儿童照顾者生活质量之间关系的系统评价。
BMC Pediatr. 2019 Jul 1;19(1):215. doi: 10.1186/s12887-019-1587-3.
5
Quality of life and coping strategies of caregivers of children with physical and mental disabilities.身心残疾儿童照料者的生活质量与应对策略
J Family Med Prim Care. 2016 Apr-Jun;5(2):343-348. doi: 10.4103/2249-4863.192360.
6
Psychosocial interventions for informal caregivers of people living with cancer.针对癌症患者非正式照护者的心理社会干预措施。
Cochrane Database Syst Rev. 2019 Jun 17;6(6):CD009912. doi: 10.1002/14651858.CD009912.pub2.
7
Enhancing resilient coping strategies for quality of life in Chinese adult children caregiving for parents with advanced cancer: a cross-sectional study.增强有韧性的应对策略,提高中国成年子女照顾晚期癌症父母的生活质量:一项横断面研究。
Support Care Cancer. 2023 Sep 26;31(10):591. doi: 10.1007/s00520-023-08057-y.
8
Perceived Stress and Coping Styles among Malay Caregivers of Children with Learning Disabilities in Kelantan.吉兰丹州学习障碍儿童的马来族照顾者的感知压力与应对方式
Malays J Med Sci. 2017 Mar;24(1):81-93. doi: 10.21315/mjms2017.24.1.9. Epub 2017 Feb 24.
9
Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress.儿童心理社会功能与儿科身材矮小患儿父母生活质量:照料压力的中介作用
Clin Psychol Psychother. 2018 Jan;25(1):e107-e118. doi: 10.1002/cpp.2146. Epub 2017 Sep 27.
10
The health and well-being of caregivers of children with cerebral palsy.脑瘫患儿照料者的健康与幸福。
Pediatrics. 2005 Jun;115(6):e626-36. doi: 10.1542/peds.2004-1689.

本文引用的文献

1
Quality of Life Among Caregivers of Children with Special Needs in Kelantan, Malaysia: The Importance of Psychosocial Mediators.马来西亚吉兰丹州有特殊需求儿童的照顾者的生活质量:心理社会调节因素的重要性。
Malays J Med Sci. 2021 Apr;28(2):128-141. doi: 10.21315/mjms2021.28.2.12. Epub 2021 Apr 21.
2
Parenting stress among caregivers of children with neurodevelopmental disorders: A cross-sectional study in Bangladesh.神经发育障碍儿童照料者的育儿压力:孟加拉国的一项横断面研究。
J Intellect Disabil. 2021 Apr 22:17446295211002355. doi: 10.1177/17446295211002355.
3
Does unemployment contribute to poorer health-related quality of life among Swedish adults?
失业是否会导致瑞典成年人健康相关生活质量下降?
BMC Public Health. 2019 Apr 29;19(1):457. doi: 10.1186/s12889-019-6825-y.
4
Burden of neurodevelopmental disorders in low and middle-income countries: A systematic review and meta-analysis.低收入和中等收入国家神经发育障碍的负担:一项系统评价和荟萃分析。
Wellcome Open Res. 2017 Dec 29;2:121. doi: 10.12688/wellcomeopenres.13540.3. eCollection 2017.
5
The relationship between raising a child with a disability and the mental health of mothers compared to raising a child without disability in japan.在日本,抚养残疾儿童的母亲与抚养非残疾儿童的母亲的心理健康状况之间的关系。
SSM Popul Health. 2016 Aug 18;2:542-548. doi: 10.1016/j.ssmph.2016.08.001. eCollection 2016 Dec.
6
Quality of life and coping strategies of caregivers of children with physical and mental disabilities.身心残疾儿童照料者的生活质量与应对策略
J Family Med Prim Care. 2016 Apr-Jun;5(2):343-348. doi: 10.4103/2249-4863.192360.
7
Transactional processes in children born preterm: Influences of mother-child interactions and parenting stress.早产儿童的互动过程:母婴互动和育儿压力的影响。
J Fam Psychol. 2015 Oct;29(5):777-87. doi: 10.1037/fam0000119. Epub 2015 Jul 6.
8
Quality of life of caregivers of children with autism in Qatar.卡塔尔自闭症儿童照顾者的生活质量。
Autism. 2012 May;16(3):293-8. doi: 10.1177/1362361311433648. Epub 2012 Feb 8.
9
The reliability and validity of the short version of the WHO Quality of Life Instrument in an Arab general population.世界卫生组织生活质量量表简版在阿拉伯普通人群中的信度和效度
Ann Saudi Med. 2009 Mar-Apr;29(2):98-104. doi: 10.4103/0256-4947.51790.
10
Health-related quality of life in parents of school-age children with Asperger Syndrome or High-Functioning Autism.患有阿斯伯格综合征或高功能自闭症的学龄儿童家长的健康相关生活质量。
Health Qual Life Outcomes. 2006 Jan 4;4:1. doi: 10.1186/1477-7525-4-1.