Tasnim Anika, Salwa Marium, Islam Sharmin, Khan Md Maruf Haque, Islam Mohammad Tanvir, Ratan Zubair Ahmed, Towhid Muhammad Ibrahim Ibne, Al Mamun Mohammad Abdullah, Amin Md Robed, Haque M Atiqul
Department of Public Health and Informatics, Bangabandhu Sheikh Mujib Medical University, Dhaka, BGD.
Department of Internal Medicine, Bangabandhu Sheikh Mujib Medical University, Dhaka, BGD.
Cureus. 2024 Sep 4;16(9):e68640. doi: 10.7759/cureus.68640. eCollection 2024 Sep.
Background Although caregiving is considered a normal phenomenon for parents, delivering care to a child with neurodevelopmental disabilities can be taxing and disastrously impact parents' quality of life (QoL). This study explored the relationship between QoL, coping strategies, and psychosocial support status of caregivers of children with neurodevelopmental disabilities. Methodology This cross-sectional study included 906 caregivers of children having neurodevelopmental disabilities utilizing the World Health Organization Quality of Life Brief and Perceived Stress Scale. A tailored questionnaire gauged coping strategies and psychosocial support. Linear regression was used to identify significant contributors. Results Most caregivers (78.8%) experienced a moderate level of stress, and their QoL scores were 14.4 (SD = 2.5) for physical health, 12.0 (SD = 2.4) for psychological health, 14.6 (SD = 1.9) for social relationships, and 12.1 (SD = 2.1) for the environment. Mothers had the lowest QoL of all caregivers. Negative influences on QoL encompassed caregiver and child age, perceived stress, and lower socioeconomic status. A higher coping score positively predicted a high health-related QoL score. Gender differences were observed in psychosocial support sources. Conclusions The study underscores the need for policymaking considering findings to develop psychosocial intervention programs for enhancing the QoL of caregivers of children with neurodevelopmental disabilities.
背景 尽管照顾孩子对父母来说被视为一种正常现象,但照顾患有神经发育障碍的孩子可能会让人疲惫不堪,并对父母的生活质量产生灾难性影响。本研究探讨了神经发育障碍儿童照顾者的生活质量、应对策略和心理社会支持状况之间的关系。
方法 这项横断面研究纳入了906名神经发育障碍儿童的照顾者,他们使用了世界卫生组织生活质量简表和感知压力量表。一份量身定制的问卷评估了应对策略和心理社会支持。采用线性回归来确定重要的影响因素。
结果 大多数照顾者(78.8%)经历了中度压力,他们在身体健康方面的生活质量得分为14.4(标准差=2.5),心理健康方面为12.0(标准差=2.4),社会关系方面为14.6(标准差=1.9),环境方面为12.1(标准差=2.1)。在所有照顾者中,母亲的生活质量最低。对生活质量的负面影响包括照顾者和孩子的年龄、感知压力以及较低的社会经济地位。较高的应对得分能正向预测较高的与健康相关的生活质量得分。在心理社会支持来源方面观察到了性别差异。
结论 该研究强调,政策制定需要考虑研究结果,以制定心理社会干预项目,提高神经发育障碍儿童照顾者的生活质量。