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评估风湿病患者从儿科转至成人护理后过渡准备情况。

Measuring Transition Readiness of Patients After Transfer from Pediatric to Adult Care in Rheumatology.

作者信息

Ayla Ali Yağiz, Beşiroğlu Helin İdil, Azman Feyza Nur, Egeli Buğra Han, Eren Hatice, Öztürk Sıla, Ergün Sercan, Adrovic Amra, Barut Kenan, Haslak Fatih, Şahin Sezgin, Yıldız Mehmet, Özdoğan Huri, Kasapçopur Özgür, Ugurlu Serdal

机构信息

Division of Rheumatology, Department of Internal Medicine, İstanbul University-Cerrahpaşa Cerrahpaşa Medical Faculty, Istanbul, Türkiye.

Department of Pediatrics, Children's Hospital of Los Angeles, University of Southern California, Los Angeles, CA, USA.

出版信息

Turk Arch Pediatr. 2024 Sep 2;59(5):501-505. doi: 10.5152/TurkArchPediatr.2024.24085.

Abstract

Transitional care is essential to maintain the continuity of care in younger patients with rheumatic diseases. In this study, we aimed to assess the transition readiness of rheumatology patients who had already transferred from pediatric to adult care using a questionnaire. We included young adult rheumatology patients who had already transferred to adult rheumatology care. The Transition Readiness Assessment Questionnaire (TRAQ) was used in the adult rheumatology clinic to assess the patients' readiness; a retrospective chart review was conducted to include diagnosis, age at diagnosis, age at transfer, and current age. Three hundred and ten patients (184 female and 126 male) participated in this study. The mean age at diagnosis, the mean age at transfer, and the mean age at the time of the study were 10.7 ± 4.29, 21.1 ± 1.69, and 24.0 ± 2.26 years, respectively. Most of the patients had familial Mediterranean fever, followed by arthritis, connective tissue disorders, and other diseases. Tracking health issues was the lowest-scored domain. Females scored significantly higher than males in the tracking health issue domain (P = .006) and managing health issue domain (P = .028) but not in the overall TRAQ score (P = .053). Patients in different diagnosis and transfer age groups scored similarly across the domains. In this study, females performed better than males in 2 domains of the TRAQ questionnaire. Diagnoses or transfer age groups were not associated with TRAQ outcomes.

摘要

过渡性护理对于维持年轻风湿性疾病患者护理的连续性至关重要。在本研究中,我们旨在使用一份问卷评估已从儿科转至成人护理的风湿病患者的过渡准备情况。我们纳入了已转至成人风湿病护理的年轻成人风湿病患者。在成人风湿病诊所使用过渡准备情况评估问卷(TRAQ)来评估患者的准备情况;进行了一项回顾性病历审查,以纳入诊断、诊断时年龄、转科时年龄和当前年龄。310名患者(184名女性和126名男性)参与了本研究。诊断时的平均年龄、转科时的平均年龄和研究时的平均年龄分别为10.7±4.29岁、21.1±1.69岁和24.0±2.26岁。大多数患者患有家族性地中海热,其次是关节炎、结缔组织病和其他疾病。跟踪健康问题是得分最低的领域。在跟踪健康问题领域(P = .006)和管理健康问题领域(P = .028),女性得分显著高于男性,但在TRAQ总分方面(P = .053)并非如此。不同诊断和转科年龄组的患者在各领域的得分相似。在本研究中,女性在TRAQ问卷的2个领域中表现优于男性。诊断或转科年龄组与TRAQ结果无关。

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