Department of Epidemiology, Boston University School of Public Health, Boston, Massachusetts, USA.
J Appl Res Intellect Disabil. 2025 Jan;38(1):e13311. doi: 10.1111/jar.13311.
At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome.
Our group of researchers and adults with Down syndrome conducted an online survey on mental health for adults with Down syndrome. We analysed quantitative data and thematically grouped coping mechanisms.
Sixty adults with Down syndrome completed the survey, mean age was 30 years, and 55% of respondents had some employment. Approximately 80% of respondents reported experiencing stress and 75% reported experiencing anxiety. Employed respondents were more likely to use social coping mechanisms.
Soliciting responses from adults with Down syndrome about their mental health can provide valuable insights. Mental health is a concern for people with Down syndrome that should be addressed.
至少有一半的唐氏综合征儿童和成人在其一生中都存在重大心理健康问题，但很少有研究直接询问唐氏综合征患者的相关经历。我们采用共同研究模式来探索唐氏综合征成年人的焦虑、压力和应对方式。
我们的研究团队和唐氏综合征成年人共同进行了一项针对唐氏综合征成年人心理健康的在线调查。我们对定量数据进行了分析，并对应对机制进行了主题分组。
共有 60 名唐氏综合征成年人完成了调查，平均年龄为 30 岁，55%的受访者有一定的就业。约 80%的受访者报告称经历过压力，75%的受访者报告称经历过焦虑。有工作的受访者更有可能使用社交应对机制。
征求唐氏综合征成年人对其心理健康的反馈意见可以提供有价值的见解。心理健康是唐氏综合征患者关注的问题，应该得到重视。
