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解读YouTube:对活体供肾移植视频的深入分析及其对患者教育的意义

Decoding YouTube: An In-depth Analysis of Living Donor Kidney Transplantation Videos and Their Implications for Patient Education.

作者信息

Haberal Hakan Bahadir, Piana Alberto, Pecoraro Alessio, Bañuelos Marco Beatriz, Prudhomme Thomas, López-Abad Alicia, Casadevall Rubau Marta, Donmez Muhammet Irfan, Breda Alberto, Territo Angelo

机构信息

Department of Urology, Ankara Ataturk Sanatoryum Training and Research Hospital, University of Health Sciences, Ankara, Turkey.

Department of Urology, San Luigi Gonzaga Hospital, University of Turin, Orbassano, Turin, Italy.

出版信息

Eur Urol Open Sci. 2024 Oct 19;70:64-69. doi: 10.1016/j.euros.2024.10.005. eCollection 2024 Dec.

Abstract

BACKGROUND AND OBJECTIVE

YouTube is an open online video platform that both patients and health care professionals use to access information. Our aim was to evaluate the quality of videos related to living-donor kidney transplantation (LDKT) on YouTube.

METHODS

Research was conducted using the keywords "living donor kidney transplant" and "kidney transplant". We evaluated videos with more than 10 000 views and excluded those not in English. A total of 58 videos met the criteria for inclusion in the evaluation. We used the modified DISCERN tool, the Journal of the American Medical Association (JAMA) benchmark score, and the Global Quality Score (GQS) to evaluate the quality, accuracy, and educational value.

KEY FINDINGS AND LIMITATIONS

The quality of the videos was low, with a median DISCERN score of 1 (interquartile range [IQR] 1-2), JAMA score of 1 (IQR 1-2), and GQS of 2 (IQR 1-3). The majority of the videos were of North American origin (75.9%) and focused on the patient experience (51.7%). The scores for patient experience videos were significantly lower than for other videos according to all three scoring systems ( < 0.001). Videos uploaded by medical centers and private physicians/nurses had significantly higher scores than videos uploaded by patients or by TV shows/programs. Evaluation of only videos with English audio is a limitation of the study.

CONCLUSIONS AND CLINICAL IMPLICATIONS

Assessment of YouTube videos presenting information on LDKT revealed low quality. Health care organizations should create online resources and share them on social media platforms.

PATIENT SUMMARY

We looked at the quality of YouTube videos on kidney transplantation using a kidney from a living donor. We found that the information presented in YouTube videos on this topic is of low quality.

摘要

背景与目的

YouTube是一个开放的在线视频平台,患者和医疗保健专业人员都可借此获取信息。我们的目的是评估YouTube上与活体供肾移植(LDKT)相关视频的质量。

方法

使用关键词“活体供肾移植”和“肾移植”进行研究。我们评估了观看次数超过10000次的视频,并排除了非英语视频。共有58个视频符合纳入评估的标准。我们使用改良的DISCERN工具、美国医学会杂志(JAMA)基准评分和全球质量评分(GQS)来评估质量、准确性和教育价值。

主要发现与局限性

视频质量较低,DISCERN评分中位数为1(四分位间距[IQR]1 - 2),JAMA评分为1(IQR 1 - 2),GQS为2(IQR 1 - 3)。大多数视频来自北美(75.9%),且聚焦于患者体验(51.7%)。根据所有三种评分系统,患者体验视频的得分显著低于其他视频(<0.001)。由医疗中心和私人医生/护士上传的视频得分显著高于患者或电视节目上传的视频。仅评估有英语音频的视频是本研究的一个局限性。

结论与临床意义

对YouTube上呈现LDKT信息的视频评估显示质量较低。医疗保健组织应创建在线资源并在社交媒体平台上分享。

患者总结

我们查看了YouTube上关于使用活体供肾进行肾移植的视频质量。我们发现YouTube上关于这个主题的视频所提供的信息质量较低。

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