Bristol Medical School, Centre for Academic Primary Care, Population Health Sciences, University of Bristol, Bristol, UK.
NIHR Bristol Biomedical Research Centre, University Hospitals Bristol and Weston NHS Foundation Trust and University of Bristol, Bristol, UK.
Health Expect. 2024 Dec;27(6):e70074. doi: 10.1111/hex.70074.
Patient and public involvement (PPI) and dissemination of research findings are key parts of the pathway to research impact; however, traditional approaches often fail to engage non-academic audiences. Creative methods such as co-developed plays can be effective ways of making the research process and findings more engaging and accessible to the public. Not much is known about how to safely involve patients and the public in the development and delivery of plays disseminating research on sensitive subjects. Members of a PPI group on a study about mindfulness for women with a history of domestic abuse co-developed and performed a play about their experiences. This study aimed to evaluate the impact, acceptability and safety of a co-developed play in publicizing PPI and findings from research on domestic abuse.
We conducted a mixed-methods study with the play team and audience. We collected 20 quantitative and 56 qualitative survey responses from audience members, carried out 4.25 h of direct observations of play performances and interviewed seven audience members and eight play team members. Data were analyzed using the framework method and descriptive statistics, using a 'following a thread' approach to integrate qualitative and quantitative findings in themes answering our study aim.
We developed three integrated themes with ten sub-themes. The 'Value' theme summarized the plays' impact on audience understanding, potential mechanisms of impact and its effectiveness in depth over breadth of dissemination. The 'Re-traumatization' theme described potential harms of the play, the risks of re-traumatizing actors and distressing audiences. The 'Reducing the risks' theme summarized ways of reducing these risks of harm.
A play co-developed and performed by study PPI members raised awareness of domestic abuse. However, there were divergent opinions on its value in disseminating messages about PPI in research on sensitive subjects. The value of the play for research dissemination was linked to its ability to emotionally engage the public, and to its accessibility. Implementing strategies to reduce the risk of re-traumatizing audience members and the project team is recommended.
Everyone with direct experience of co-creating and performing the play contributed to this study. This included four public contributors: a community theatre producer, two actors with lived experience of domestic abuse who were members of the study PPI group and one community actor already working with the community theatre. A participatory workshop with PPI contributors was held to refine our research questions and data collection instruments, using a public involvement evaluation tool, The Cube. PPI contributors checked and commented on the draft manuscript.
患者和公众参与（PPI）以及研究结果的传播是研究产生影响的途径的关键部分；然而，传统方法往往无法吸引非学术受众。合作开发的戏剧等创意方法可以有效地使公众更关注研究过程和结果。对于如何安全地让患者和公众参与到传播关于敏感主题的研究的开发和实施中，我们知之甚少。在一项关于有受虐史的女性正念研究的 PPI 小组的成员合作开发并上演了一部关于他们经历的戏剧。本研究旨在评估合作开发的戏剧在宣传 PPI 和传播受虐研究结果方面的影响、可接受性和安全性。
我们对戏剧团队和观众进行了一项混合方法研究。我们从观众那里收集了 20 份定量和 56 份定性调查回复，对戏剧表演进行了 4.25 小时的直接观察，并采访了 7 名观众和 8 名戏剧团队成员。使用框架方法和描述性统计分析数据，采用“按线索”方法将定性和定量发现整合到回答我们研究目的的主题中。
我们开发了三个综合主题和十个子主题。“价值”主题总结了戏剧对观众理解、潜在影响机制以及深度而非广度传播的有效性的影响。“再创伤”主题描述了戏剧的潜在危害、演员再创伤的风险和观众的痛苦。“降低风险”主题总结了降低这些伤害风险的方法。
由研究 PPI 成员合作开发和表演的戏剧提高了公众对虐待的认识。然而，对于在研究传播敏感主题中的 PPI 方面，该剧的价值存在不同意见。该剧在传播研究信息方面的价值与它能够在情感上吸引公众以及它的可及性有关。建议实施策略以降低观众和项目团队再创伤的风险。
直接参与合作创作和表演的每个人都为这项研究做出了贡献。这包括四位公众贡献者：一位社区剧院制作人、两位有受虐史的演员，他们是研究 PPI 小组的成员，一位社区演员已经与社区剧院合作。与 PPI 贡献者举行了一次参与式研讨会，使用公众参与评估工具“立方体”来完善我们的研究问题和数据收集工具。PPI 贡献者检查并评论了手稿草稿。
