设计用于炎症性肠病患者自我管理的智能手机应用程序的基本信息需求
Designing the Essential Informational Needs of a Smartphone Application for Self-Management of Patients With Inflammatory Bowel Disease.
作者信息
Asadi Farkhondeh, Hosseini Azamossadat, Daeechini Amir Hossein
机构信息
Department of Health Information Technology and Management School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences Tehran Iran.
出版信息
Health Sci Rep. 2024 Nov 18;7(11):e70186. doi: 10.1002/hsr2.70186. eCollection 2024 Nov.
BACKGROUND AND AIMS
Inflammatory bowel disease (IBD) is a chronic digestive disease that has a detrimental effect on the quality of life of IBD patients. This study aims to identify the informational needs and design the essential informational needs for a smartphone application for the self-management of IBD.
METHODS
This study was conducted in two stages and the informational needs of the patients were extracted in a questionnaire designed in three separate sections and given to 120 patients with UC and 60 patients with CD.
RESULTS
After a literature review and analysis of patient responses, it was found that Knowledge of the disease, Medication, Educational information, Complications, Diet & Nutrition, and Lifestyle habits are among the most important domains of informational needs of inflammatory bowel disease patients.
CONCLUSION
Patients with IBD have many informational needs, and in this study, identifying these needs, can help improve the quality of life of these patients and be of interest to healthcare providers, designers, and developers of applications.
背景与目的
炎症性肠病（IBD）是一种慢性消化系统疾病，对IBD患者的生活质量有不利影响。本研究旨在确定IBD患者自我管理智能手机应用程序的信息需求，并设计其基本信息需求。
方法
本研究分两个阶段进行，通过一份设计为三个独立部分的问卷提取患者的信息需求，并将问卷发放给120名溃疡性结肠炎（UC）患者和60名克罗恩病（CD）患者。
结果
经过文献综述和对患者回复的分析，发现疾病知识、药物治疗、教育信息、并发症、饮食与营养以及生活习惯是炎症性肠病患者信息需求中最重要的领域。
结论
IBD患者有许多信息需求，在本研究中，识别这些需求有助于提高这些患者的生活质量，并且对医疗保健提供者、应用程序设计师和开发者具有吸引力。
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