Department of Nursing, Guizhou Provincial People's Hospital, Guiyang, Guizhou, China.
Department of Surgical Nursing, School of Nursing, Guizhou Medical University, Guiyang, Guizhou, China.
Perspect Psychiatr Care. 2020 Oct;56(4):777-784. doi: 10.1111/ppc.12492. Epub 2020 Mar 8.
To explore the challenges of parents caring for early-stage schizophrenia (ESS) children/adolescents in China.
Thirteen parents of ESS subjects completed semi-structured interviews. Thematic analysis was used to analyze data.
Seven themes emerged from the data: psychological shock and emotional burden; lack of disease knowledge and care skill; poor treatment compliance of the patient; difficulty getting along with the patient; conflict within the family or in the workplace; financial burden; and need sufficient social support. Each challenge was produced and influenced under the Chinese special social context.
Professional support was needed to help patients with schizophrenia to cope with their situation promptly. Education initiatives should focus on mental health to prevent discrimination from society and enable people to recognize the early symptoms of schizophrenia in children. Telemedicine should be explored for application in the treatment of mental illness. Also, a broader nationwide healthcare policy would be needed to help to reduce the individual and societal financial burdens associated with schizophrenia.
探讨中国父母照顾早期精神分裂症（ESS）患儿/青少年所面临的挑战。
对 13 名 ESS 患者的家长进行半结构式访谈。采用主题分析法对数据进行分析。
从数据中得出 7 个主题：心理冲击和情绪负担；缺乏疾病知识和护理技能；患者治疗依从性差；与患者相处困难；家庭或工作场所内部冲突；经济负担；以及需要足够的社会支持。每个挑战都是在中国特殊的社会背景下产生和影响的。
需要专业支持来帮助精神分裂症患者及时应对他们的状况。教育活动应侧重于心理健康，以防止社会歧视，并使人们能够认识到儿童精神分裂症的早期症状。应探索远程医疗在精神疾病治疗中的应用。此外，还需要更广泛的全国性医疗保健政策，以帮助减轻与精神分裂症相关的个人和社会经济负担。
