Salley Christina G, Bakula Dana M, Driscoll Colleen F Bechtel, Flanagan-Priore Catherine, Kapke Theresa L, Moore Rachel M, Parris Kendra R, Sharkey Christina M
Courageous Parents Network.
Children's Mercy Kansas City.
Clin Pract Pediatr Psychol. 2024 Sep;12(3):328-338. doi: 10.1037/cpp0000514. Epub 2024 Mar 7.
The objective of this topical review is to provide rationale for the development of standards of care to address the mental health needs of caregivers of youth with chronic and acute conditions.
In this topical review, we describe the relationship between pediatric medical conditions and caregiver mental health, the state of available screening and intervention options, standards of care in medicine, existing caregiver mental health standards in pediatric subspecialty populations, and exemplar caregiver mental health programs that were developed in response to standards. Finally, we will describe our rationale for this standard of care, provide a call to action, and describe anticipated challenges in developing and implementing such standards. The content of this topical review was guided by expert knowledge, literature review, and communication with members of the American Psychological Association (APA) Division 54 through listserv communication. This review did not involve human subjects research and thus did not require IRB approval, informed consent, or assent.
Standards of Care to address caregiver mental health in pediatrics is one approach to reduce gaps between caregivers' needs and access to treatment. Standards that address caregiver mental health exist for a subset of pediatric medical subspecialty populations but are non-existent across most pediatric populations.
Multidisciplinary collaboration, with broad stakeholder input, could result in the writing of Standards of Care to lead to program development that addresses mental health for caregivers of children with a range of chronic and acute conditions.
本专题综述的目的是为制定护理标准提供理论依据，以满足患有慢性和急性疾病的青少年照顾者的心理健康需求。
在本专题综述中，我们描述了儿科疾病与照顾者心理健康之间的关系、可用的筛查和干预选项的现状、医学护理标准、儿科亚专科人群中现有的照顾者心理健康标准，以及为响应这些标准而制定的照顾者心理健康示范项目。最后，我们将阐述我们制定该护理标准的理论依据，发出行动呼吁，并描述在制定和实施此类标准时预期会遇到的挑战。本专题综述的内容以专家知识、文献综述以及通过邮件列表与美国心理学会（APA）第54分会成员的交流为指导。本综述不涉及人体研究，因此无需获得机构审查委员会（IRB）的批准、知情同意或同意。
解决儿科照顾者心理健康问题的护理标准是缩小照顾者需求与获得治疗之间差距的一种方法。针对儿科医学亚专科人群的一部分存在解决照顾者心理健康问题的标准，但在大多数儿科人群中并不存在。
多学科合作，广泛征求利益相关者的意见，可能会促成护理标准的制定，从而推动项目开发，以解决患有一系列慢性和急性疾病儿童的照顾者的心理健康问题。
