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中国肺癌患者与家庭照顾者在化疗期间的相互关系体验:一项定性研究

Experiences of mutuality between Chinese lung cancer patients and family caregivers during chemotherapy: a qualitative study.

作者信息

Wu Min, Liu Mengshi, Fang Yu, Liu Mengjie, Zhang Jingshuo, Zhang Xiaoman

机构信息

Xuzhou Medical University, Xuzhou, China.

出版信息

Support Care Cancer. 2024 Dec 5;33(1):5. doi: 10.1007/s00520-024-09061-6.

Abstract

BACKGROUND

This qualitative study aims to deeply understand the emotional experiences of mutuality relationships between lung cancer patients undergoing chemotherapy and their caregivers, providing insights for developing cancer-related mutuality interventions.

METHODS

Using a qualitative research method with semi-structured interviews, 15 pairs of patients and their caregivers from the Department of Respiratory Medicine at the Affiliated People's Hospital of Xuzhou Medical University were selected as subjects. Data were qualitatively and inductively analyzed using Braun and Clarke's thematic analysis method.

RESULTS

Five themes and fourteen sub-themes were extracted from the experiences and interactions between patients and caregivers: reciprocity and mutual support (support provided by patients to caregivers, support provided by caregivers to patients), challenges (lack of communication, difficulty in adaptation, role changes, economic burdens), change and adaptation (living with the disease, social support), negative outcomes (increased burden on caregivers, disruption of social activities and family relationships), and intervention needs (need for disease knowledge, humanistic care, communication skills).

CONCLUSION

The findings of this study provide healthcare professionals with information on the mutual support and challenges faced by chemotherapy patients and their caregivers in coping with cancer. This information aims to facilitate culturally-based psychological interventions, enhance mutuality, improve quality of life, and promote the entire family's adaptation to the disease.

摘要

背景

本定性研究旨在深入了解接受化疗的肺癌患者与其照顾者之间相互关系的情感体验,为制定癌症相关的相互性干预措施提供见解。

方法

采用半结构式访谈的定性研究方法,选取徐州医科大学附属医院呼吸内科的15对患者及其照顾者作为研究对象。运用布劳恩和克拉克的主题分析法对数据进行定性和归纳分析。

结果

从患者与照顾者的经历和互动中提取出五个主题和十四个子主题:互惠与相互支持(患者对照顾者的支持、照顾者对患者的支持)、挑战(沟通不畅、适应困难、角色变化、经济负担)、改变与适应(与疾病共存、社会支持)、负面结果(照顾者负担加重、社会活动和家庭关系受到干扰)以及干预需求(对疾病知识的需求、人文关怀、沟通技巧)。

结论

本研究结果为医护人员提供了化疗患者及其照顾者在应对癌症时相互支持和面临挑战的相关信息。这些信息旨在促进基于文化的心理干预,增强相互性,提高生活质量,并促进整个家庭对疾病的适应。

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