McCauley Rachel, McQuillan Regina, Ryan Karen, Foley Geraldine
Discipline of Occupational Therapy, School of Medicine, Trinity College Dublin, Dublin, Ireland.
St. Francis Hospice Dublin, Dublin, Ireland.
Palliat Med. 2021 May;35(5):875-885. doi: 10.1177/0269216321999962. Epub 2021 Apr 2.
Patients in palliative care are usually conceptualised as recipients of support from family caregivers. Family caregivers in palliative care are typically defined as providers of support to patients. Little is known about reciprocal dimensions of support provision between patients and family caregivers in palliative care.
To identify processes of mutual support between patients and family caregivers in palliative care and factors that contribute to or obstruct mutual support between patients and family caregivers in palliative care.
Systematic review and narrative synthesis of original peer-reviewed research published between January 2000 and March 2020.
Medline, CINAHL, Embase, AMED, PsycINFO and PsycARTICLES.
After full-text screening, 10 studies were included. We identified that patients and family caregivers in palliative care can support one another by mutually acknowledging the challenges they face, by remaining positive for one another and by jointly adapting to their changing roles. However, patients and family caregivers may not routinely communicate their distress to each other or reciprocate in distress disclosure. A lack of mutual disclosure pertaining to distress can result in conflict between patients and family caregivers.
Few studies have focused in whole or in part, on reciprocal dimensions of support provision between patients with advancing non-curable conditions, and their family caregivers in palliative care. Further research is required to identify key domains of mutual support between patients and family caregivers in palliative care.
姑息治疗中的患者通常被视为家庭照顾者支持的接受者。姑息治疗中的家庭照顾者通常被定义为患者支持的提供者。对于姑息治疗中患者与家庭照顾者之间支持提供的相互维度，人们了解甚少。
确定姑息治疗中患者与家庭照顾者之间相互支持的过程，以及促进或阻碍姑息治疗中患者与家庭照顾者之间相互支持的因素。
对2000年1月至2020年3月发表的经同行评审的原创研究进行系统综述和叙述性综合分析。
医学文献数据库（Medline）、护理学与健康领域数据库（CINAHL）、荷兰医学文摘数据库（Embase）、联合和补充医学数据库（AMED）、心理学文摘数据库（PsycINFO）和心理学全文数据库（PsycARTICLES）。
经过全文筛选，纳入了10项研究。我们发现，姑息治疗中的患者和家庭照顾者可以通过相互承认他们面临的挑战、相互保持积极态度以及共同适应他们不断变化的角色来相互支持。然而，患者和家庭照顾者可能不会经常相互交流他们的痛苦，也不会在痛苦披露方面相互回应。缺乏与痛苦相关的相互披露可能导致患者和家庭照顾者之间产生冲突。
很少有研究完全或部分关注患有不可治愈疾病进展的患者及其姑息治疗中的家庭照顾者之间支持提供的相互维度。需要进一步研究以确定姑息治疗中患者与家庭照顾者之间相互支持的关键领域。
