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促进照顾者及其子女参与研究的招募和保留策略:一项范围综述。

Recruitment and retention strategies to promote research engagement among caregivers and their children: A scoping review.

作者信息

Corr Tammy E, Jusufagic Alma, Basting James, Caldwell Catherine, King Steven, Zgierska Aleksandra E

机构信息

Department of Pediatrics, Division of Neonatal-Perinatal Medicine, Penn State College of Medicine, Penn State Milton S. Hershey Medical Center, Hershey, PA, USA.

Department of Obstetrics and Gynecology, MedStar Georgetown University Hospital and Washington Hospital Center, WA, District of Columbia, USA.

出版信息

J Clin Transl Sci. 2024 Nov 8;8(1):e194. doi: 10.1017/cts.2024.624. eCollection 2024.

DOI:10.1017/cts.2024.624
PMID:39655035
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11626585/
Abstract

Long-term health and developmental impact after opioid and other substance exposures is unclear. There is an urgent need for well-designed, prospective, long-term observational studies. The HEALthy Brain and Child Development Study aims to address this need. It will require optimizing recruitment and retention of caregivers and young children in long-term research. Therefore, a scoping review of original research articles, indexed in the PubMed database and published in English between January 1, 2010, and November 23, 2023, was conducted on recruitment and retention strategies of caregiver-child (≤6 years old) dyads in observational, cohort studies. Among 2,902 titles/abstracts reviewed, 37 articles were found eligible. Of those, 29 (78%) addressed recruitment, and 18 (49%) addressed retention. Thirty-four (92%) articles focused on strategies for facilitating recruitment and/or retention, while 18 (49%) described potentially harmful approaches. Recruitment and retention facilitators included face-to-face and regular contact, establishing a relationship with study personnel, use of technology and social platforms, minimizing inconveniences, and promoting incentives. This review demonstrates that numerous factors can affect engagement of caregivers and their children in long-term cohort studies. Better understanding of these factors can inform researchers about optimal approaches to recruitment and retention of caregiver-child dyads in longitudinal research.

摘要

阿片类药物及其他物质暴露后的长期健康和发育影响尚不清楚。迫切需要设计完善的前瞻性长期观察性研究。“健康大脑与儿童发育研究”旨在满足这一需求。这将需要在长期研究中优化照顾者和幼儿的招募与留用。因此,我们对2010年1月1日至2023年11月23日期间发表在PubMed数据库中、以英文撰写的关于观察性队列研究中照顾者 - 儿童(≤6岁)二元组招募与留用策略的原创研究文章进行了范围综述。在审查的2902篇标题/摘要中,发现37篇文章符合条件。其中,29篇(78%)涉及招募,18篇(49%)涉及留用。34篇(92%)文章聚焦于促进招募和/或留用的策略,而18篇(49%)描述了潜在有害的方法。招募和留用促进因素包括面对面和定期联系、与研究人员建立关系、使用技术和社交平台、尽量减少不便以及提供激励措施。本综述表明,许多因素会影响照顾者及其子女参与长期队列研究。更好地理解这些因素可以为研究人员提供关于在纵向研究中招募和留用照顾者 - 儿童二元组的最佳方法的信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/99df/11626585/e28c7a5d29a5/S2059866124006241_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/99df/11626585/e28c7a5d29a5/S2059866124006241_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/99df/11626585/e28c7a5d29a5/S2059866124006241_fig1.jpg

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本文引用的文献

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Transportation, childcare, lodging, and meals: Key for participant engagement and inclusion of historically underrepresented populations in the healthy brain and child development birth cohort.交通、儿童保育、住宿和膳食:参与健康大脑与儿童发育出生队列研究以及纳入历史上代表性不足人群的关键因素。
J Clin Transl Sci. 2024 Feb 12;8(1):e38. doi: 10.1017/cts.2024.4. eCollection 2024.
2
Cohort profile: the BABY1000 pilot prospective longitudinal birth cohort study based in Sydney, Australia.队列资料简介:基于澳大利亚悉尼的 BABY1000 前瞻性纵向出生队列研究的初步报告
BMJ Open. 2023 Jun 8;13(6):e068275. doi: 10.1136/bmjopen-2022-068275.
3
Promoting research engagement among women with addiction: Impact of recovery peer support in a pilot randomized mixed-methods study.
促进女性成瘾者的研究参与:在一项试点随机混合方法研究中康复同伴支持的影响。
Contemp Clin Trials. 2023 Jul;130:107235. doi: 10.1016/j.cct.2023.107235. Epub 2023 May 19.
4
Factors associated with research participation in a large primary care practice-based pediatric cohort: Results from the TARGet Kids! longitudinal cohort study.与大型初级保健实践为基础的儿科队列研究参与相关的因素:来自 TARGet Kids!纵向队列研究的结果。
PLoS One. 2023 Apr 11;18(4):e0284192. doi: 10.1371/journal.pone.0284192. eCollection 2023.
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Factors related to retention in a longitudinal study of infants at familial risk for autism.在一项针对有自闭症家族风险婴儿的纵向研究中与留用相关的因素。
JCPP Adv. 2023 Jan 26;3(1):e12140. doi: 10.1002/jcv2.12140. eCollection 2023 Mar.
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