González David Andrés, Tosin Michelle Hyczy de Siqueira, Warner-Rosen Tila, Goetz Christopher G
Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA.
Mov Disord Clin Pract. 2025 Mar;12(3):358-363. doi: 10.1002/mdc3.14298. Epub 2024 Dec 13.
Loneliness and isolation impact health detrimentally but are understudied in Parkinson's disease (PD). Outcome measurement properties for social connection remain unexplored in PD.
To evaluate the measurement properties of six social connection outcomes in PD.
We evaluated internal consistency, structural validity, and construct validity for measures of loneliness (brief UCLA Loneliness Scale [ULS3], short and long de Jong Gierveld Loneliness Scale [dJGLS], social isolation [Cohen Social Network Index-SNI total people, SNI high contact networks], and social support brief Perceived Social Support Scale [PSS]).
We administered measures to 178 PD participants (M = 67.9; 81.5% at Hoehn & Yahr stage 2). There was strong internal consistency, content validity across outcomes, and a 1-factor structure (PSS, ULS3) and a 2-factor structure (dJGLS) for two measures each.
We provide a toolbox for clinicians and researchers studying social connection in PD.
孤独和孤立对健康有不利影响，但在帕金森病（PD）中对此研究不足。PD患者社会联系的结果测量特性仍未得到探索。
评估PD患者六种社会联系结果的测量特性。
我们评估了孤独感测量指标（简短版加州大学洛杉矶分校孤独量表[ULS3]、德容-吉尔维尔德孤独量表短版和长版[dJGLS]）、社会孤立感测量指标（科恩社会网络指数-总人数、科恩社会网络指数-高接触网络）以及社会支持测量指标（简短版领悟社会支持量表[PSS]）的内部一致性、结构效度和构想效度。
我们对178名PD患者进行了测量（平均年龄M = 67.9岁；81.5%处于 Hoehn & Yahr 分级2期）。各测量指标具有很强的内部一致性、内容效度，且其中两个测量指标（PSS、ULS3）呈现单因素结构，另外两个测量指标（dJGLS）呈现双因素结构。
我们为研究PD患者社会联系的临床医生和研究人员提供了一个工具箱。
