Phillips Emily K, Chudyk Anna M, Monnin Caroline, Schultz Annette S H, Arora Rakesh C, Duhamel Todd A, O'Keefe-McCarthy Sheila
Applied Health Sciences, Faculty of Graduate Studies, University of Manitoba, Winnipeg, Manitoba, Canada.
College of Pharmacy, University of Manitoba, Winnipeg, Manitoba, Canada.
Health Expect. 2024 Dec;27(6):e70127. doi: 10.1111/hex.70127.
Patient and care partner engagement in research (PER) is important in generating knowledge to improve healthcare. Arts-based methods (ABM) use art in the research process to share aesthetic knowledge, which is knowledge that may be too complex to share only verbally. Together, PER and ABM are potentially synergistic, as both are participatory, problem-focused, dialogic, and collaborative; yet little is known of the utility of ABM for PER.
A narrative review was performed to identify, collate, and summarize the ways ABM has been used with PER and share the impacts of ABM on PER. The databases CINAHL, Scopus, and PubMed were searched, and 15 articles were included.
A wide variety of ABM were used for PER, with some studies using multiple ABMs. The use of ABM for PER was reported to be decolonizing, shifted power from researchers to people with lived experience, and reduced tokenism. People with lived experience shared their knowledge directly through their art, deepening the understanding of their emotions, feelings, and relationships.
Researchers should consider the benefits of the participatory nature of ABM and explore how to engage people with lived experience in their work beyond data collection. Researchers engaging people with lived experience should consider using ABM as a way to operationalize PER to elicit aesthetic knowledge and strengthen power equalization.
No patients or members of the public contributed to this review due to a lack of funding to support their meaningful involvement.
患者及护理伙伴参与研究（PER）对于生成改善医疗保健的知识很重要。基于艺术的方法（ABM）在研究过程中运用艺术来分享美学知识，这种知识可能过于复杂而无法仅通过口头表述来分享。PER和ABM可能具有协同作用，因为二者都具有参与性、以问题为导向、对话性和协作性；然而，对于ABM在PER中的效用知之甚少。
进行了一项叙述性综述，以识别、整理和总结ABM与PER结合使用的方式，并分享ABM对PER的影响。检索了CINAHL、Scopus和PubMed数据库，纳入了15篇文章。
多种ABM被用于PER，一些研究使用了多种ABM。据报道，将ABM用于PER具有去殖民化的作用，将权力从研究人员转移到有实际经验的人手中，并减少了象征主义。有实际经验的人通过他们的艺术直接分享他们的知识，加深了对他们的情感、感受和关系的理解。
研究人员应考虑ABM参与性本质的益处，并探索如何让有实际经验的人在数据收集之外也参与到他们的工作中。让有实际经验的人参与研究的人员应考虑使用ABM作为实施PER的一种方式，以引出美学知识并加强权力均衡。
由于缺乏资金支持有意义的参与，没有患者或公众参与本综述。
