Glenn Laura M, Jackson Dan, Barton Carly, Lan Doris, Fuhrmeister Lisa, Symons Karen, Turnour Louise, Tefay Ben, Holland Anne E, Goh Nicole S L, Troy Lauren K, Brooke Mark, Glaspole Ian N, Corte Tamera J
The University of Sydney School of Medicine (Central Clinical School), Sydney, New South Wales, Australia.
Department of Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Sydney, New South Wales, Australia.
Respirology. 2025 Feb;30(2):147-157. doi: 10.1111/resp.14874. Epub 2024 Dec 17.
Digital technologies offer opportunities for remote monitoring, increased patient engagement and incorporation of patient-reported outcome measures (PROMs) into interstitial lung disease (ILD) care and research. This study evaluated the usability and patient experience of the RE-BUILD (Registry for Better Understanding of ILD) application, an ILD-specific smartphone app.
Patients with ILD aged ≥18 years were recruited from three tertiary ILD centres to use the RE-BUILD app for 6 months. The mHealth App Usability Questionnaire (MAUQ) was evaluated at 1, 3 and 6 months and patients received monthly prompts to enter clinical and PROM data. Qualitative interviews regarding patient experience were performed in a subset of 10.
Fifty patients, with mean age 66.9 ± 10.3 years, 25 (50%) female were included. Participants used the app for a median of 48 (IQR 21-178.3) sessions, equivalent to 8 sessions (IQR 3.5-29.71) per month. Median number of days that the app was accessed was 37 (IQR 14-96.8), with 13 (26%) patients using the app >30 times per month. The most accessed app feature was physical activity, followed by 'air quality'. Participants agreed or strongly agreed that the app was easy to use (76.0%) easy to learn to use (79.8%) and well-organized with accessible information (74.8%). The median overall MAUQ score for usability was 5.69 (IQR 5.03-6.19). There was also a high rate of engagement with app functionalities.
RE-BUILD is a usable and intuitive platform for self-monitoring and data collection in ILD. Patients report a high degree of satisfaction and have provided valuable feedback for its further development.
数字技术为远程监测、提高患者参与度以及将患者报告结局测量（PROMs）纳入间质性肺疾病（ILD）的护理和研究提供了机会。本研究评估了特定于ILD的智能手机应用程序RE-BUILD（更好地了解ILD登记处）应用程序的可用性和患者体验。
从三个三级ILD中心招募年龄≥18岁的ILD患者，使用RE-BUILD应用程序6个月。在第1、3和6个月评估移动健康应用程序可用性问卷（MAUQ），并每月提示患者输入临床和PROM数据。对10名患者进行了关于患者体验的定性访谈。
纳入50名患者，平均年龄66.9±10.3岁，其中25名（50%）为女性。参与者使用该应用程序的中位数为48次（四分位间距21-178.3），相当于每月8次（四分位间距3.5-29.71）。应用程序被访问的天数中位数为37天（四分位间距14-96.8），13名（26%）患者每月使用该应用程序超过30次。访问最多的应用程序功能是身体活动，其次是“空气质量”。参与者同意或强烈同意该应用程序易于使用（76.0%）、易于学习使用（79.8%）且组织良好、信息易于获取（74.8%）。可用性的MAUQ总体得分中位数为5.69（四分位间距5.03-6.19）。应用程序功能的参与率也很高。
RE-BUILD是一个用于ILD自我监测和数据收集的可用且直观的平台。患者报告高度满意，并为其进一步开发提供了有价值的反馈。
