James Lija, Hailey Louise, Bundy Christine, Burstow Helen, Chandler David, Cowper Russ, Helliwell Philip, Joannes Lucille, Kelly Andy, Kennedy Bronagh, Kinsella Suzannah, McAteer Helen, Mukherjee Sandeep, Packham Jon, Wise Elspeth, Young Helen, Dures Emma, Coates Laura C
Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), University of Oxford, Oxford, UK.
School of Healthcare Sciences, Cardiff University, Cardiff, UK.
Rheumatology (Oxford). 2025 Jul 1;64(7):4335-4340. doi: 10.1093/rheumatology/keae680.
Little is known about the ideal service delivery model and shortcomings in patient experiences in the NHS for patients with psoriatic arthritis (PsA). The objective of this work was to identify unmet needs perceived within the current health service delivery model for PsA from the UK Psoriatic Arthritis Priority Setting Partnership (PsA-PSP).
An online survey was conducted in 2020 and distributed to people with PsA, their carers and clinicians to identify research priorities in PsA. The participants were asked to submit three questions unanswered in PsA research. A proportion of submissions related to health service delivery were identified, which were deemed as out of scope for the main PsA-PSP but nevertheless important to report. Content analysis was used to analyse these submissions separately.
We reviewed 138 submissions that were not related to the James Lind PSP and research priorities in PsA. Among these, 118 (85.5%) were focused on health service delivery and were classified into five main themes: rheumatology service, primary care navigation, education, holistic care, and ethnicity, diversity and inclusion. Further analysis within the rheumatology service theme revealed additional sub-themes that emphasized integrating multidisciplinary services, improving access to advice lines and ensuring fair access to treatments.
The five key themes provide valuable insights into the important areas of interest within health service delivery in the UK. By understanding these themes, policymakers, healthcare providers and researchers can better prioritize their efforts and address the specific care needs of people with PsA, their care providers and clinicians.
对于英国国家医疗服务体系（NHS）中银屑病关节炎（PsA）患者的理想服务提供模式以及患者体验方面的不足，我们了解甚少。这项工作的目的是从英国银屑病关节炎优先事项设定合作组织（PsA - PSP）中识别当前PsA医疗服务提供模式中未得到满足的需求。
2020年开展了一项在线调查，调查对象为PsA患者、他们的护理人员以及临床医生，以确定PsA的研究重点。参与者被要求提交三个PsA研究中未得到解答的问题。我们识别出了一部分与医疗服务提供相关的提交内容，这些内容虽被认为超出了主要的PsA - PSP范围，但仍值得报告。采用内容分析法对这些提交内容进行单独分析。
我们审查了138份与詹姆斯·林德优先事项设定合作组织及PsA研究重点无关的提交内容。其中，118份（85.5%）聚焦于医疗服务提供，并被归类为五个主要主题：风湿病服务、初级保健导航、教育、整体护理以及种族、多样性和包容性。在风湿病服务主题内的进一步分析揭示了其他子主题，这些子主题强调整合多学科服务、改善咨询热线的接入以及确保公平获得治疗。
这五个关键主题为英国医疗服务提供中重要的关注领域提供了有价值的见解。通过了解这些主题，政策制定者、医疗服务提供者和研究人员能够更好地确定工作重点，并满足PsA患者、其护理人员和临床医生的特定护理需求。
