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参与数字世界:关于居住在庇护性护理机构中的残疾人数字社交接触的共识声明。

Participating in the digital world: a consensus statement on digital social contact for people with disabilities living in sheltered care facility homes.

作者信息

Douma Linda N, Tharner Anne, Sterkenburg Paula S, Piekema Lotte, Ten Brug Annet, Frielink Noud, Bakkum Lianne, Adam Esmee, de Schipper J Clasien, Embregts Petri, Schuengel Carlo

机构信息

Department of Clinical Child and Family Studies, Amsterdam Public Health Research Institute, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.

Viveon, Amsterdam, The Netherlands.

出版信息

Int J Dev Disabil. 2023 Mar 24;70(8):1452-1466. doi: 10.1080/20473869.2023.2190115. eCollection 2024.

Abstract

INTRODUCTION

Digital social contact is increasingly being used, which accelerated during the COVID-19 pandemic. This study aimed to determine the consensus among stakeholders regarding recommendations for the use and facilitation of digital social contact for people with intellectual disabilities living in sheltered care facility homes.

METHODS

This consensus statement was developed in three consecutive rounds of questionnaires (rapid online modified Delphi design). The expert-groups included people with disabilities ( = 6) and their families ( = 10), support professionals ( = 9), behavioural consultants ( = 7), managers of sheltered care facility homes ( = 10), scientists and industry experts ( = 15).

FINDINGS

Four main themes were identified: 1. Reasons for and types of digital social contact; 2. Support and training needs; 3. Materials and other requirements needed to enable digital social contact; and 4. Best practices and future developments. For each theme, several recommendations were formulated.

DISCUSSION AND CONCLUSION

This study resulted in a consensus statement aimed mainly at care professionals, families of people with intellectual disabilities and managers of sheltered care facility homes. Findings show that digital social contact can contribute to societal participation of people with disabilities. Additionally, tailored exploration of digital contact is recommended, as well as aiming for inclusive-by-design technology developments with developers and stakeholders working together.

摘要

引言

数字社交联系的使用日益增加,在新冠疫情期间加速发展。本研究旨在确定利益相关者对于为居住在庇护性护理机构中的智障人士使用和促进数字社交联系的建议的共识。

方法

本共识声明是通过连续三轮问卷调查(快速在线改良德尔菲设计)制定的。专家小组包括残疾人(6名)及其家人(10名)、支持专业人员(9名)、行为顾问(7名)、庇护性护理机构经理(10名)、科学家和行业专家(15名)。

结果

确定了四个主要主题:1. 数字社交联系的原因和类型;2. 支持和培训需求;3. 实现数字社交联系所需的材料和其他要求;4. 最佳实践和未来发展。针对每个主题制定了若干建议。

讨论与结论

本研究得出了一项主要针对护理专业人员、智障人士家庭和庇护性护理机构经理的共识声明。研究结果表明,数字社交联系有助于残疾人的社会参与。此外,建议对数字联系进行有针对性的探索,并与开发者和利益相关者共同致力于实现设计上具有包容性的技术发展。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7114/11660413/24d8a26c4fd7/YJDD_A_2190115_F0001_B.jpg

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