Li Meng, Li Qingmiao, Wei Junfan, Li Yanhong, Liu Feng, Li Shen, Zhang Ning, Song Ruipeng, Li Qiong, Cao Jing
Nursing Department, The Third People's Hospital of Henan Province, Zhengzhou, People's Republic of China.
School of Management, California State University, Long Beach, CA, USA.
Patient Prefer Adherence. 2024 Dec 27;18:2681-2696. doi: 10.2147/PPA.S484296. eCollection 2024.
This study aimed to analyze the real experiences of patients with Meige Syndrome, which is an idiopathic dystonia, during the perioperative period and to explore the practical application and effectiveness of Individual and Family Self-Management Theory (IFSMT) in improving patient experiences.
A qualitative descriptive research methodology was employed to elucidate the intricate psychological and social experiences encountered by patients with Meige Syndrome throughout the perioperative phase. This study conduct face-to-face, one-on-one, semi-structured interviews with 16 Meige Syndrome patients to gain an in-depth understanding of the patients' true feelings and needs. Interview data were organized and analyzed using Colaizzi's method, and themes were refined in conjunction with IFSMT to reveal patients' self-management practices and influencing factors.
Through in-depth analysis using Colaizzi's method and the application of IFSMT to the perioperative experiences of patients with Meige Syndrome, and reported according to COREQ standards, three core themes were identified: (1) Context Dimension (specific disease factors, physical and social environmental factors, personal and family factors), (2) Process Dimension (knowledge and beliefs, self-regulation and self-efficacy, social facilitation), and (3) Outcome Dimension (proximal and distal outcomes of self-management behaviors).
This study demonstrates that IFSMT has significant application value in the perioperative experiences of patients with Meige Syndrome. Enhancing patients' knowledge, beliefs, self-regulation abilities, and social support can promote effective self-management behaviors, thereby improving their quality of life and health status. Additionally, the study reveals the complexity of self-management in perioperative patients, emphasizing the importance of interdisciplinary collaboration and comprehensive interventions in enhancing patient experiences. Future research can further explore how to apply these theories in clinical practice to optimize perioperative management and rehabilitation processes for patients with Meige Syndrome.
本研究旨在分析特发性肌张力障碍——梅杰综合征患者围手术期的真实经历，并探讨个体与家庭自我管理理论（IFSMT）在改善患者体验方面的实际应用及效果。
采用定性描述性研究方法，以阐明梅杰综合征患者在整个围手术期所经历的复杂心理和社会体验。本研究对16例梅杰综合征患者进行面对面、一对一的半结构式访谈，以深入了解患者的真实感受和需求。访谈数据采用Colaizzi法进行整理和分析，并结合IFSMT提炼主题，以揭示患者的自我管理行为及影响因素。
通过运用Colaizzi法进行深入分析，并将IFSMT应用于梅杰综合征患者的围手术期体验，按照COREQ标准报告，确定了三个核心主题：（1）情境维度（特定疾病因素、身体和社会环境因素、个人及家庭因素），（2）过程维度（知识与信念、自我调节与自我效能、社会促进），以及（3）结果维度（自我管理行为的近端和远端结果）。
本研究表明IFSMT在梅杰综合征患者围手术期体验中具有重要应用价值。增强患者的知识、信念、自我调节能力和社会支持可促进有效的自我管理行为，从而改善其生活质量和健康状况。此外，该研究揭示了围手术期患者自我管理的复杂性，强调了跨学科协作和综合干预在提升患者体验方面的重要性。未来研究可进一步探索如何将这些理论应用于临床实践，以优化梅杰综合征患者的围手术期管理和康复过程。
