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与现今被称为澳大利亚的这片土地上的原住民共同开展医疗保健领域的共同设计:一项叙述性综述。

Co-design in healthcare with and for First Nations Peoples of the land now known as Australia: a narrative review.

作者信息

Gerrard James, Godwin Shirley, Whiteley Kim, Charles James, Sadler Sean, Chuter Vivienne

机构信息

Discipline of Podiatry, School of Health Sciences, Western Sydney University, Dharawal Country, Campbelltown, NSW, Australia.

La Trobe University Rural Health School, Dja Dja Wurrung Country, Bendigo, Victoria, Australia.

出版信息

Int J Equity Health. 2025 Jan 6;24(1):2. doi: 10.1186/s12939-024-02358-2.

Abstract

Increasing use of co-design concepts and buzzwords create risk of generating 'co-design branded' healthcare research and healthcare system design involving insincere, contrived, coercive engagement with First Nations Peoples. There are concerns that inauthenticity in co-design will further perpetuate and ingrain harms inbuilt to colonial systems.Co-design is a tool that inherently must truly reposition power to First Nations Peoples, engendering both respect and ownership. Co-design is a tool for facilitating cultural responsiveness, and therefore a tool for creating healthcare systems that First Nations People may judge as safe to approach and use. True co-design centres First Nations cultures, perspectives of health, and lived experiences, and uses decolonising methodologies in addressing health determinants of dispossession, assimilation, intergenerational trauma, racism, and genocide.Authentic co-design of health services can reduce racism and improve access through its decolonising methods and approaches which are strategically anti-racist. Non-Indigenous people involved in co-design need to be committed to continuously developing cultural responsiveness. Education and reflection must then lead to actions, developing skill sets, and challenging 'norms' of systemic inequity. Non-Indigenous people working and supporting within co-design need to acknowledge their white or non-Indigenous privileges, need ongoing cultural self-awareness and self-reflection, need to minimise implicit bias and stereotypes, and need to know Australian history and recognise the ongoing impacts thereof.This review provides narrative on colonial load, informed consent, language and knowledge sharing, partnering in co-design, and monitoring and evaluation in co-design so readers can better understand where power imbalance, racism, and historical exclusion undermine co-design, and can easily identify skills and ways of working in co-design to rebut systemic racism. If the process of co-design in healthcare across the First Nations of the land now known as Australia is to meaningfully contribute to change from decades of historical and ongoing systemic racism perpetuating power imbalance and resultant health inequities and inequality, co-designed outcomes cannot be a pre-determined result of tokenistic, managed, or coercive consultation. Outcomes must be a true, correct, and beneficial result of a participatory process of First Nations empowered and led co-design and must be judged as such by First Nations Peoples.

摘要

越来越多地使用共同设计概念和流行语,带来了产生 “共同设计品牌” 的医疗保健研究和医疗保健系统设计的风险,这些设计涉及与原住民进行不真诚、做作、强制性的互动。有人担心,共同设计中的不真实性将进一步延续并加深殖民体系中固有的伤害。共同设计是一种工具,其本质上必须真正将权力重新定位给原住民,从而产生尊重和自主权。共同设计是促进文化响应性的工具,因此也是创建原住民可能认为安全可及且可用的医疗保健系统的工具。真正的共同设计以原住民文化、健康观念和生活经历为中心,并使用去殖民化方法来解决剥夺、同化、代际创伤、种族主义和种族灭绝等健康决定因素。通过其具有战略反种族主义意义的去殖民化方法和途径,医疗服务的真正共同设计可以减少种族主义并改善可及性。参与共同设计的非原住民需要致力于不断培养文化响应能力。教育和反思必须进而转化为行动,培养技能,并挑战系统性不平等的 “规范”。在共同设计中工作和提供支持的非原住民需要承认自己的白人或非原住民特权,需要持续的文化自我意识和自我反思,需要尽量减少隐性偏见和刻板印象,并且需要了解澳大利亚历史并认识到其持续影响。本综述阐述了殖民负担、知情同意、语言和知识共享、共同设计中的合作以及共同设计中的监测和评估,以便读者能够更好地理解权力不平衡、种族主义和历史排斥在何处破坏共同设计,并且能够轻松识别共同设计中的技能和工作方式,以反驳系统性种族主义。如果在现今被称为澳大利亚的这片土地上,原住民地区的医疗保健共同设计过程要切实有助于改变数十年来历史上一直存在的系统性种族主义,这种种族主义使权力不平衡以及由此产生的健康不公平和不平等长期存在,那么共同设计的结果就不能是象征性、受控制或强制性协商的预先确定结果。结果必须是原住民赋权并主导的共同设计参与过程的真实、正确且有益的成果,并且必须得到原住民的认可。

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