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帕金森病中可穿戴设备的使用现状:一项针对帕金森病患者的调查

The current state of wearable device use in Parkinson's disease: a survey of individuals with Parkinson's.

作者信息

Hirczy Siegfried, Zabetian Cyrus, Lin Yi-Han

机构信息

Department of Neurology, Veterans Affairs Puget Sound Health Care System, Seattle, WA, United States.

Department of Neurology, University of Washington, Seattle, WA, United States.

出版信息

Front Digit Health. 2024 Dec 23;6:1472691. doi: 10.3389/fdgth.2024.1472691. eCollection 2024.

DOI:10.3389/fdgth.2024.1472691
PMID:39764207
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11701158/
Abstract

BACKGROUND

Interest in wearable device use in Parkinson's disease (PD) has grown rapidly with many compelling studies supporting diagnostic and therapeutic uses. Concurrently, consumer devices have proliferated and their role in health and wellness has expanded. However, incorporation of consumer and medical wearable devices into medical care has in our experience been limited.

OBJECTIVE

We sought to assess the current state of consumer and medical wearable device use among those with PD and to understand the factors impacting their rate of use.

METHODS

An anonymous online survey of individuals with PD in the US was conducted from July 9th, 2023, to Jan 8th, 2024, with 298 completed responses collected.

RESULTS

Greater than 90% of respondents were interested in new technologies with 67% having had experiences with consumer wearable devices. Only 24% were using consumer devices for disease management and many functions were not fully utilized. Medical wearable device use was very limited with only 8% having used a device. Users of both consumer and medical wearables generally reported low barriers to use despite continued strong perceptions on the importance of cost, impact on care, comfort, and other factors.

CONCLUSION

This study demonstrates that for the clinical management of PD there is limited use of wearable devices even among individuals who are motivated and experienced with consumer wearable device use. Additionally, it is suggested that substantial barriers to medical wearable use are likely originating from the provider and/or systemic level.

摘要

背景

随着许多有说服力的研究支持可穿戴设备在帕金森病(PD)中的诊断和治疗用途,人们对其在帕金森病中的使用兴趣迅速增长。与此同时,消费级设备大量涌现,其在健康领域的作用也不断扩大。然而,根据我们的经验,将消费级和医疗可穿戴设备纳入医疗护理的情况有限。

目的

我们试图评估帕金森病患者使用消费级和医疗可穿戴设备的现状,并了解影响其使用率的因素。

方法

2023年7月9日至2024年1月8日,对美国的帕金森病患者进行了一项匿名在线调查,共收集到298份完整回复。

结果

超过90%的受访者对新技术感兴趣,67%的人有使用消费级可穿戴设备的经历。只有24%的人将消费级设备用于疾病管理,许多功能未得到充分利用。医疗可穿戴设备的使用非常有限,只有8%的人使用过相关设备。消费级和医疗可穿戴设备的用户普遍表示使用障碍较低,尽管他们仍然强烈认为成本、对护理的影响、舒适度和其他因素很重要。

结论

这项研究表明,即使在有使用消费级可穿戴设备动机和经验的个体中,可穿戴设备在帕金森病临床管理中的使用也很有限。此外,有人认为医疗可穿戴设备使用的重大障碍可能源于提供者和/或系统层面。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64dd/11701158/be415c5d70f8/fdgth-06-1472691-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64dd/11701158/4a20bea47cac/fdgth-06-1472691-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64dd/11701158/1afffe56b773/fdgth-06-1472691-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64dd/11701158/be415c5d70f8/fdgth-06-1472691-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64dd/11701158/4a20bea47cac/fdgth-06-1472691-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64dd/11701158/1afffe56b773/fdgth-06-1472691-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/64dd/11701158/be415c5d70f8/fdgth-06-1472691-g003.jpg

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J Mov Disord. 2024 Oct;17(4):408-415. doi: 10.14802/jmd.24104. Epub 2024 Sep 9.
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Quantifying Parkinson's disease severity using mobile wearable devices and machine learning: the ParkApp pilot study protocol.使用移动可穿戴设备和机器学习量化帕金森病严重程度:ParkApp 试点研究方案。
BMJ Open. 2023 Dec 28;13(12):e077766. doi: 10.1136/bmjopen-2023-077766.
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Overview on wearable sensors for the management of Parkinson's disease.
用于帕金森病管理的可穿戴传感器综述。
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Usability and utility of a remote monitoring system to support physiotherapy for people with Parkinson's disease.用于支持帕金森病患者物理治疗的远程监测系统的可用性和实用性。
Front Neurol. 2023 Oct 12;14:1251395. doi: 10.3389/fneur.2023.1251395. eCollection 2023.
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Identification of motor progression in Parkinson's disease using wearable sensors and machine learning.使用可穿戴传感器和机器学习识别帕金森病的运动进展
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Wearable movement-tracking data identify Parkinson's disease years before clinical diagnosis.可穿戴运动追踪数据可在临床诊断前数年识别帕金森病。
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