• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

出生缺陷与心理社会适应

Birth defects and psychosocial adjustment.

作者信息

Heller A, Rafman S, Zvagulis I, Pless I B

出版信息

Am J Dis Child. 1985 Mar;139(3):257-63. doi: 10.1001/archpedi.1985.02140050051021.

DOI:10.1001/archpedi.1985.02140050051021
PMID:3976606
Abstract

A one-year prospective study was conducted to examine the extent to which type of disability, severity, and family functioning serve to predict maladjustment. One hundred forty children, aged 4 to 13 years, born with cardiovascular disorders, cleft lip or palate, or hearing defects were assessed using the Child Behavior Checklist at two points in time. The results suggest that the type of disorder and severity are associated with remaining or becoming maladjusted. Deaf girls and boys with cardiac problems were most likely to be affected, followed by boys with clefts and boys with hearing problems. A direct relationship is found with severity assessed by the Functional Status Measure. Family functioning, however, is not significantly related to maladjustment. These findings provide a framework for better understanding factors contributing to the increased risk of maladjustment for some children with birth defects.

摘要

开展了一项为期一年的前瞻性研究,以考察残疾类型、严重程度和家庭功能在多大程度上可预测适应不良情况。对140名年龄在4至13岁、患有心血管疾病、唇腭裂或听力缺陷的儿童在两个时间点使用儿童行为量表进行了评估。结果表明,疾病类型和严重程度与持续存在或出现适应不良情况有关。患有心脏问题的失聪女孩和男孩受影响的可能性最大,其次是患有唇腭裂的男孩和有听力问题的男孩。研究发现适应不良情况与功能状态测量所评估的严重程度存在直接关系。然而,家庭功能与适应不良情况并无显著关联。这些研究结果为更好地理解导致一些出生缺陷儿童适应不良风险增加的因素提供了一个框架。

相似文献

1
Birth defects and psychosocial adjustment.出生缺陷与心理社会适应
Am J Dis Child. 1985 Mar;139(3):257-63. doi: 10.1001/archpedi.1985.02140050051021.
2
[Problems of development and care of children born with selected congenital malformations: Down's syndrome, cardiopathy, cleft lip and palate, clubfoot].
Pediatr Med Chir. 1986 Mar-Apr;8(2):243-52.
3
Early parental adjustment to visible congenital disfigurement.父母对明显先天性畸形的早期适应情况。
Child Care Health Dev. 1994 Jul-Aug;20(4):251-66. doi: 10.1111/j.1365-2214.1994.tb00388.x.
4
[Social orientation of parents of children with cleft lip and palate].[唇腭裂患儿家长的社会取向]
HNO. 2003 Jun;51(6):507-12. doi: 10.1007/s00106-003-0843-9. Epub 2003 May 13.
5
[The cleft lip and palate: psychological following child and family investment].唇腭裂:儿童及家庭投入后的心理状况
Arch Pediatr. 2010 Jun;17(6):794-5. doi: 10.1016/S0929-693X(10)70115-9.
6
Psychosocial well-being of parents of children with oral clefts.患有唇腭裂儿童的父母的心理社会幸福感。
Child Care Health Dev. 2016 Jan;42(1):42-50. doi: 10.1111/cch.12276. Epub 2015 Aug 25.
7
Psychosocial adjustment in children and adolescents with a craniofacial anomaly: diagnosis-specific patterns.患有颅面畸形的儿童和青少年的心理社会适应:特定诊断模式
Cleft Palate Craniofac J. 2010 May;47(3):264-72. doi: 10.1597/08-227.1.
8
Risk and Protective Factors at Age 16: Psychological Adjustment in Children With a Cleft Lip and/or Palate.16岁时的风险与保护因素:唇腭裂患儿的心理调适
Cleft Palate Craniofac J. 2015 Sep;52(5):555-73. doi: 10.1597/14-063. Epub 2014 Sep 11.
9
Quality of life in school-age children with orofacial clefts and their families.患有口面部裂隙的学龄儿童及其家庭的生活质量。
J Craniofac Surg. 2009 Nov;20(6):2061-6. doi: 10.1097/SCS.0b013e3181be8892.
10
[Cleft Lip/Palate diagnosis in early childhood of Nicaragua: impact of the diagnosis on a family level.].[尼加拉瓜幼儿期唇腭裂诊断:该诊断对家庭层面的影响。]
Rev Fac Cien Med Univ Nac Cordoba. 2018 Dec 13;75(4):270-278. doi: 10.31053/1853.0605.v75.n4.19931.

引用本文的文献

1
Association of Patient Factors and Follow-Up in an International Volunteer Cleft Lip and Palate Repair Clinic in El Salvador.萨尔瓦多国际志愿者唇腭裂修复诊所中患者因素与随访的关联。
J Craniofac Surg. 2022;33(8):2477-2481. doi: 10.1097/SCS.0000000000008715. Epub 2022 Jul 21.
2
Follow-Up Care Barriers for Patients with Orofacial Clefts.唇腭裂患者的随访护理障碍。
Cleft Palate Craniofac J. 2022 Oct;59(10):1213-1221. doi: 10.1177/10556656211042162. Epub 2021 Oct 22.
3
The Pathogenesis of Port Wine Stain and Sturge Weber Syndrome: Complex Interactions between Genetic Alterations and Aberrant MAPK and PI3K Activation.
葡萄酒色斑和脑面血管瘤病的发病机制:遗传改变与异常 MAPK 和 PI3K 激活之间的复杂相互作用。
Int J Mol Sci. 2019 May 7;20(9):2243. doi: 10.3390/ijms20092243.
4
Membrane trafficking and exocytosis are upregulated in port wine stain blood vessels.葡萄酒色斑血管中膜转运和胞吐作用上调。
Histol Histopathol. 2019 May;34(5):479-490. doi: 10.14670/HH-18-051. Epub 2018 Oct 10.
5
Topical Halometasone Reduces Acute Adverse Effects Induced by Pulsed Dye Laser for Treatment of Port Wine Stain Birthmarks.外用卤米松可减轻脉冲染料激光治疗葡萄酒色斑胎记引起的急性不良反应。
J Lasers Med Sci. 2018 Winter;9(1):19-22. doi: 10.15171/jlms.2018.05. Epub 2017 Dec 26.
6
Coexistence of Eph receptor B1 and ephrin B2 in port-wine stain endothelial progenitor cells contributes to clinicopathological vasculature dilatation.Eph 受体 B1 和 Ephrin B2 在葡萄酒色斑内皮祖细胞中的共存有助于临床病理血管扩张。
Br J Dermatol. 2017 Dec;177(6):1601-1611. doi: 10.1111/bjd.15716. Epub 2017 Nov 16.
7
Activation of PKCα and PI3K Kinases in Hypertrophic and Nodular Port Wine Stain Lesions.肥大性和结节性葡萄酒色斑病变中PKCα和PI3K激酶的激活
Am J Dermatopathol. 2017 Oct;39(10):747-752. doi: 10.1097/DAD.0000000000000785.
8
Topical rapamycin systematically suppresses the early stages of pulsed dye laser-induced angiogenesis pathways.局部应用雷帕霉素可系统性抑制脉冲染料激光诱导的血管生成途径的早期阶段。
Lasers Surg Med. 2014 Nov;46(9):679-88. doi: 10.1002/lsm.22296. Epub 2014 Sep 30.
9
Update on flashlamp pumped pulsed dye laser treatment for port wine stains (capillary malformation) patients.鲜红斑痣(毛细血管畸形)患者的闪光灯泵浦脉冲染料激光治疗进展
Laser Ther. 2011;20(4):265-72. doi: 10.5978/islsm.11-re-01.
10
Topical rapamycin suppresses the angiogenesis pathways induced by pulsed dye laser: molecular mechanisms of inhibition of regeneration and revascularization of photocoagulated cutaneous blood vessels.局部应用雷帕霉素可抑制脉冲染料激光诱导的血管生成途径:光凝皮肤血管再生和血管形成抑制的分子机制
Lasers Surg Med. 2012 Dec;44(10):796-804. doi: 10.1002/lsm.22101. Epub 2012 Dec 4.