子宫腺肌病患者的生活经历及对诊断过程的认知：一项范围综述
Women's experiences of living with adenomyosis and perceptions of the diagnostic journey: a scoping review.
作者信息
Taylor Margaret A, Croudace Tim J, Muir Fiona E, McBride Margot
机构信息
University of Dundee, Dundee, UK
Radiology, NHS Tayside, Dundee, UK.
出版信息
BMJ Open. 2025 Jan 20;15(1):e087122. doi: 10.1136/bmjopen-2024-087122.
OBJECTIVES
Uterine adenomyosis is a common gynaecological disease that can be debilitating. It is poorly understood and may be overlooked in clinical settings. A research gap exists as there are currently no published scoping reviews on perceptions and experiences early in the illness course. As part of a professional doctorate thesis, the aim of this review is to systematically retrieve and describe available literature, exploring the impact of living with adenomyosis and perceptions of the diagnostic journey.
DESIGN
A scoping review is conducted using JBI methodology.
DATA SOURCES
Medline, CINAHL Plus, Web of Science, Google Scholar, Cochrane library, JBI and PROSPERO databases, EThOS online and Google. Searches were made from database inception to July 2023.
ELIGIBILITY CRITERIA
The characteristics of the evidence sourced were deliberately broad. Studies exploring the experiences and perceptions of women diagnosed with adenomyosis were considered.
DATA EXTRACTION AND SYNTHESIS
Titles and abstracts were initially screened. Subsequently, eligibility was clarified through methods section inspection, and the remaining studies were read in depth. A manual hand-search of references of selected studies was conducted. Prespecified data were extracted, charted and categorised into themes.
RESULTS
Six eligible studies were found, with themes describing impact and burdens, as well as several categories of unsupported needs. No studies specifically focused on perceptions of the diagnostic journey, but some eligible studies made minor reference to this and are included.
CONCLUSIONS
This review highlights the profound impact of adenomyosis and is the first to explore the lived experiences and the diagnostic journey. Understanding the burdens of disease in terms of perceptions and lived experience in combination with the experiences of diagnostic interactions is vital to improving diagnostic pathways. Education with improved multidisciplinary collaboration and further qualitative and case study research will be crucial to achieve this goal.
REGISTRATION
A priori protocol was registered (https://doi.org/10.17605/OSF.IO/2UDYN) and published (https://doi.org/10.1136/bmjopen-2023-075316).
目的
子宫腺肌病是一种常见的妇科疾病，会使人虚弱。人们对它了解甚少，在临床环境中可能会被忽视。由于目前尚无关于疾病早期认知和经历的已发表的范围综述，因此存在研究空白。作为专业博士论文的一部分，本综述的目的是系统地检索和描述现有文献，探讨子宫腺肌病患者的生活影响以及对诊断过程的认知。
设计
采用循证卫生保健国际协作网（JBI）方法进行范围综述。
数据来源
医学期刊数据库（Medline）、护理学与健康领域数据库（CINAHL Plus）、科学引文索引数据库（Web of Science）、谷歌学术、考克兰图书馆、JBI和国际前瞻性系统评价注册库（PROSPERO）数据库、英国国家论文数字化图书馆在线数据库（EThOS）以及谷歌。检索时间从各数据库建库起至2023年7月。
纳入标准
所获取证据的特征有意设定得较为宽泛。纳入探索被诊断为子宫腺肌病的女性的经历和认知的研究。
数据提取与综合
首先筛选标题和摘要。随后，通过检查方法部分来明确纳入资格，对其余研究进行深入阅读。对所选研究的参考文献进行人工手工检索。提取预先设定的数据，制成图表并归类为不同主题。
结果
共找到六项符合条件的研究，其主题描述了影响和负担，以及几类未得到满足的需求。没有研究专门关注对诊断过程的认知，但一些符合条件的研究略有提及，已纳入本综述。
结论
本综述突出了子宫腺肌病的深远影响，并且首次探讨了患者的实际经历和诊断过程。从认知和实际经历以及诊断互动的经历方面理解疾病负担，对于改善诊断途径至关重要。通过加强多学科协作进行教育以及进一步开展定性研究和案例研究对实现这一目标至关重要。
注册情况
预先制定的方案已注册（https://doi.org/10.17605/OSF.IO/2UDYN）并发表（https://doi.org/10.1136/bmjopen-2023-075316）。
Zotero 插件