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用于纵向数据收集的移动应用程序:对 former 重症监护患者的基于网络的调查研究 (注:这里“former”不太明确准确意思,可能是“既往的”之类含义,具体结合上下文理解)

Mobile Applications for Longitudinal Data Collection: Web-based Survey Study of Former Intensive Care Patients.

作者信息

Molinnus Denise, Mainz Anne, Kurth Angelique, Lowitsch Volker, Nüchter Matthias, Bloos Frank, Wendt Thomas, Potratz Philipp, Marx Gernot, Meister Sven, Bickenbach Johannes

机构信息

Department of Intensive Care Medicine, Faculty of Medicine, RWTH Aachen University, Aachen, Germany.

Health Informatics, Faculty of Health/School of Medicine, Witten/Herdecke University, Witten, Germany.

出版信息

J Med Syst. 2025 Jan 31;49(1):18. doi: 10.1007/s10916-025-02151-w.

Abstract

PURPOSE

Mobile health plays an important role in providing individualized information about the health status of patients. Limited information exists on intensive care unit (ICU) patients with the risk of suffering from the post-intensive care syndrome (PICS), summarizing long-term physical, mental and cognitive impairment. This web-based survey study aims to identify specific needs of former ICU patients for utilizing a newly developed, so called Post-Intensive Care Outcome Surveillance (PICOS) app to collect relevant PICS-related parameters.

METHODS

A prototype app was developed following interaction principles for interactive systems of usability engineering. Patients from four different German hospitals were asked about demographics, interaction with technology and their perception of the prototype regarding hedonic motivation, perceived ease of use and performance expectancy.

RESULTS

123 patients participated in the survey; the majority owned and used smartphones. Nearly half of respondents would seek help from family members or caregivers using the app. There was a difference in affinity for technology for participants who own a smartphone and those who do not, t(116) = - 0.97, p = .335, and no significant difference in affinity for technology whether the participants would like support when using the app or not, t(97) = 1.81, p = .073. The average hedonic motivation for using the app was M = 4.44 (SD = 1.304).

CONCLUSION

This app prototype was perceived as both beneficial and easy to use, indicating its success among former ICU patients. Due to aging and ongoing health impairments, every second patient would need assistance with the initial use of the app.

摘要

目的

移动健康在提供患者健康状况的个性化信息方面发挥着重要作用。关于有患重症监护后综合征(PICS)风险的重症监护病房(ICU)患者的信息有限,PICS总结了长期的身体、心理和认知障碍。这项基于网络的调查研究旨在确定 former ICU 患者使用新开发的所谓重症监护后结果监测(PICOS)应用程序收集与PICS相关的参数的具体需求。

方法

根据可用性工程交互系统的交互原则开发了一个应用程序原型。询问了来自德国四家不同医院的患者的人口统计学信息、与技术的交互情况以及他们对该原型在享乐动机、感知易用性和性能期望方面的看法。

结果

123名患者参与了调查;大多数人拥有并使用智能手机。近一半的受访者会使用该应用程序向家人或护理人员寻求帮助。拥有智能手机的参与者和没有智能手机的参与者在对技术的亲和力上存在差异,t(116) = - 0.97,p = 0.335,并且无论参与者在使用应用程序时是否希望得到支持,他们对技术的亲和力没有显著差异,t(97) = 1.81,p = 0.073。使用该应用程序的平均享乐动机为M = 4.44(标准差 = 1.304)。

结论

这个应用程序原型被认为既有益又易于使用,表明它在 former ICU 患者中取得了成功。由于年龄增长和持续的健康损害,每两名患者中就有一名在最初使用该应用程序时需要帮助。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/60f6/11785681/f5cab4edc958/10916_2025_2151_Fig1_HTML.jpg

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