Power Luke, Xie Tong, Bartlett Thomas, Hoxha Dejla, Bryson Heather, Drummond Eva, Fairbairn Poppy, Swan Alex, Tan Yu-Wen, Caddick Lorna, Murray Aja
School of Philosophy, Psychology and Language Sciences, Psychology Department, University of Edinburgh, Edinburgh, Scotland.
Faculty of Psychology, Beijing Normal University, Beijing, China.
Health Expect. 2025 Apr;28(2):e70218. doi: 10.1111/hex.70218.
There is now widespread recognition within adolescence mental health research of the ethical imperative and benefits of coproduction. This has led to the development of best practice guidelines and the routine reporting of coproduction methods. However, there are unique considerations associated with involving young people in research with varying designs, e.g., longitudinal. Ideally, these decisions are made in consultation with young people themselves. Thus, the objective and novel contribution of this paper is (1) the involvement of young people in the development of the MHIM protocol, including an evaluative framework, and (2) a study protcol that utilises coproduction in the context of a longitudinal mental health project.
We present a coproduction protocol (MHIM-YPAG), developed with young people (pre-study YPAG), that describes the planned approach to involving young people in the MHIM study. MHIM will use an accelerated longitudinal-cohort design that will combine ecological momentary assessment, bio-sampling, radar-based sleep measurement and online questionnaires to examine the relationship between daily-life-experiences and adolescence mental health. The protocol describes how young people will be involved in MHIM and how impact will be evaluated. Within this context, coproduction relates to (1) the codevelopment, with young people, of the study's structure and (2) their involvement as researchers, e.g., recruitment, data interpretation and knowledge-exchange.
As one of the first protocols of its kind, our coproduction protocol, informed by literature and consultations with young people (pre-study YPAG), can provide a template for planning and reporting coproduction in mental health studies of adolescence.
目前,青少年心理健康研究领域已广泛认识到合作生产的伦理必要性和益处。这促使了最佳实践指南的制定以及合作生产方法的常规报告。然而,让年轻人参与不同设计(如纵向研究)的研究存在一些独特的考量。理想情况下,这些决策应与年轻人自身协商后做出。因此,本文的目标性和创新性贡献在于:(1)让年轻人参与青少年心理健康纵向研究方案(MHIM)及其评估框架的制定;(2)提出一项在纵向心理健康项目中运用合作生产的研究方案。
我们展示了一个与年轻人(研究前青年参与小组)共同制定的合作生产方案(MHIM - YPAG),该方案描述了让年轻人参与MHIM研究的计划方法。MHIM将采用加速纵向队列设计,结合生态瞬时评估、生物样本采集、基于雷达的睡眠测量和在线问卷,以研究日常生活经历与青少年心理健康之间的关系。该方案描述了年轻人将如何参与MHIM以及如何评估影响。在此背景下,合作生产涉及:(1)与年轻人共同制定研究结构;(2)让他们作为研究人员参与,如招募、数据解读和知识交流。
作为同类的首批方案之一,我们的合作生产方案以文献和与年轻人(研究前青年参与小组)的协商为依据,可为青少年心理健康研究中合作生产的规划和报告提供模板。