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一款面向年轻人的创伤支持应用程序:协同设计与可用性研究。

A Trauma Support App for Young People: Co-design and Usability Study.

作者信息

Thell Maria, Edvardsson Kerstin, Aljeshy Reem, Ibrahim Kalid, Warner Georgina

机构信息

Child Health and Parenting, Department of Public Health and Caring Science, Uppsala University, Uppsala, Sweden.

出版信息

JMIR Form Res. 2025 Mar 18;9:e57789. doi: 10.2196/57789.

Abstract

BACKGROUND

One of the most common reasons young people with mental health issues, such as posttraumatic stress disorder, do not seek help is stigma, which digital support tools could help address. However, there is a lack of trauma support apps specifically designed for young people. Involving the target group in such projects has been shown to produce more engaging and effective results.

OBJECTIVE

This study aimed to apply a child rights-based participatory approach to develop a trauma support app with young people.

METHODS

Seven young people (aged 14-19 years; 3 males and 4 females) with experiences of trauma were recruited as coresearchers. A child rights-based framework guided the working process. The app was developed through a series of Design Studio workshops and home assignments, using the manualized intervention Teaching Recovery Techniques as the foundation for its content. The coresearchers were trained in research methodology and conducted usability testing with other young people (n=11) using the think-aloud method, the System Usability Scale (SUS), and qualitative follow-up questions.

RESULTS

A functional app prototype was developed using a no-code platform, incorporating various trauma symptom management techniques. These techniques covered psychoeducation, normalization, relaxation, and cognitive shifting, presented in multiple formats, including text, audio, and video. The contributions of the coresearchers to the design can be categorized into 3 areas: mechanics (rules and interactions shaping the app's structure), dynamics (user-visible elements, such as the outcome when pressing a button), and aesthetics (the emotional responses the app aimed to evoke in users during interaction). Beyond influencing basic aesthetics, the coresearchers placed significant emphasis on user experience and the emotional responses the app could evoke. SUS scores ranged from 67.5 to 97.5, with the vast majority exceeding 77.5, indicating good usability. However, usability testing revealed several issues, generally of lower severity. For instance, video content required improvements, such as reducing light flickering in some recordings and adding rewind and subtitle selection options. Notably, the feature for listening to others' stories was removed to minimize emotional burden, shifting the focus to text formats with more context.

CONCLUSIONS

Young people who have experienced trauma can actively participate in the cocreation of a mental health intervention, offering valuable insights into the needs and preferences of their peers. Applying a child rights-based framework to their involvement in a research project supported the fulfillment of the Convention on the Rights of the Child Article 12.

摘要

背景

患有创伤后应激障碍等心理健康问题的年轻人不寻求帮助的最常见原因之一是耻辱感,数字支持工具可能有助于解决这一问题。然而,专门为年轻人设计的创伤支持应用程序却很匮乏。让目标群体参与此类项目已被证明能产生更具吸引力和更有效的成果。

目的

本研究旨在采用基于儿童权利的参与式方法,与年轻人共同开发一款创伤支持应用程序。

方法

招募了7名有创伤经历的年轻人(年龄在14 - 19岁之间;3名男性和4名女性)作为共同研究者。一个基于儿童权利的框架指导了工作过程。该应用程序是通过一系列设计工作室研讨会和家庭作业开发的,以手册化干预“教学康复技巧”作为其内容基础。共同研究者接受了研究方法培训,并使用出声思维法、系统可用性量表(SUS)和定性后续问题,对其他年轻人(n = 11)进行了可用性测试。

结果

使用无代码平台开发了一个功能齐全的应用程序原型,纳入了各种创伤症状管理技术。这些技术涵盖心理教育、正常化、放松和认知转换,以多种格式呈现,包括文本、音频和视频。共同研究者对设计的贡献可分为三个领域:机制(塑造应用程序结构的规则和交互)、动态(用户可见元素,如按下按钮时的结果)和美学(应用程序在交互过程中旨在唤起用户的情感反应)。除了影响基本美学外,共同研究者还非常重视用户体验以及应用程序可能唤起的情感反应。SUS得分在67.5至97.5之间,绝大多数超过77.5,表明可用性良好。然而,可用性测试发现了几个问题,一般严重程度较低。例如,视频内容需要改进,如减少一些录制中的光线闪烁,并添加倒带和字幕选择选项。值得注意的是,为了尽量减少情感负担,听取他人故事的功能被移除,将重点转移到具有更多背景信息的文本格式上。

结论

有创伤经历的年轻人可以积极参与心理健康干预的共同创作,为同龄人对需求和偏好提供有价值的见解。在他们参与研究项目时应用基于儿童权利的框架有助于实现《儿童权利公约》第12条。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7d83/11962313/780b26ee182e/formative_v9i1e57789_fig1.jpg

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