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增强阴茎癌患者的能力:迈向支持性自我管理模式

Empowering people affected by penile cancer: towards a model for supportive self-management.

作者信息

Paterson Catherine, Earle Wayne, Homewood David, Chee Justin, Yao Henry, Sengupta Shomik, Agbejule Oluwaseyifunmi Andi, Knowles Reegan, Ee Carolyn, Niyonsenga Theo, Davis Ian D

机构信息

Flinders University, Caring Futures Institute, Adelaide, SA, Australia.

Central Adelaide Local Health Network, Adelaide, SA, Australia.

出版信息

Int J Impot Res. 2025 Mar 19. doi: 10.1038/s41443-025-01042-5.

Abstract

Improvements in the quality of penile cancer management are difficult due to the rarity of the condition and a limited evidence base for treatment decisions. Penile cancer and some of its highly morbid treatments can cause profound psychosexual and physical effects that negatively impact quality of life. Multidisciplinary interventions are required to equip patients with the support necessary to manage their emotional, physical, work, and lifestyle challenges to optimize health, well-being, and recovery. This paper outlines a model of supported self-management, which is a novel model of care for people with penile cancer to mitigate disease and treatment morbidity.

摘要

由于阴茎癌病例罕见且治疗决策的证据基础有限,提高阴茎癌的管理质量存在困难。阴茎癌及其一些高致残性治疗可能会造成严重的心理性和生理性影响,对生活质量产生负面影响。需要多学科干预,为患者提供必要的支持,以应对其在情感、身体、工作和生活方式方面的挑战,从而优化健康、福祉和康复情况。本文概述了一种支持性自我管理模式,这是一种针对阴茎癌患者的新型护理模式,可减轻疾病和治疗的致残率。

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