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增强阴茎癌患者的能力:迈向支持性自我管理模式

Empowering people affected by penile cancer: towards a model for supportive self-management.

作者信息

Paterson Catherine, Earle Wayne, Homewood David, Chee Justin, Yao Henry, Sengupta Shomik, Agbejule Oluwaseyifunmi Andi, Knowles Reegan, Ee Carolyn, Niyonsenga Theo, Davis Ian D

机构信息

Flinders University, Caring Futures Institute, Adelaide, SA, Australia.

Central Adelaide Local Health Network, Adelaide, SA, Australia.

出版信息

Int J Impot Res. 2025 Mar 19. doi: 10.1038/s41443-025-01042-5.

DOI:10.1038/s41443-025-01042-5
PMID:40108337
Abstract

Improvements in the quality of penile cancer management are difficult due to the rarity of the condition and a limited evidence base for treatment decisions. Penile cancer and some of its highly morbid treatments can cause profound psychosexual and physical effects that negatively impact quality of life. Multidisciplinary interventions are required to equip patients with the support necessary to manage their emotional, physical, work, and lifestyle challenges to optimize health, well-being, and recovery. This paper outlines a model of supported self-management, which is a novel model of care for people with penile cancer to mitigate disease and treatment morbidity.

摘要

由于阴茎癌病例罕见且治疗决策的证据基础有限,提高阴茎癌的管理质量存在困难。阴茎癌及其一些高致残性治疗可能会造成严重的心理性和生理性影响,对生活质量产生负面影响。需要多学科干预,为患者提供必要的支持,以应对其在情感、身体、工作和生活方式方面的挑战,从而优化健康、福祉和康复情况。本文概述了一种支持性自我管理模式,这是一种针对阴茎癌患者的新型护理模式,可减轻疾病和治疗的致残率。

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本文引用的文献

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Addressing cancer care in low- to middle-income countries: a call for sustainable innovations and impactful research.
解决中低收入国家的癌症护理问题:呼吁可持续创新和有影响力的研究。
BMC Cancer. 2023 Aug 15;23(1):756. doi: 10.1186/s12885-023-11272-9.
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Summary Paper on the 2023 European Association of Urology Guidelines on the Management of Non-neurogenic Male Lower Urinary Tract Symptoms.2023 年欧洲泌尿外科学会关于非神经源性男性下尿路症状管理指南的总结论文。
Eur Urol. 2023 Aug;84(2):207-222. doi: 10.1016/j.eururo.2023.04.008. Epub 2023 May 17.
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Anxiety and depression in adult cancer patients: ESMO Clinical Practice Guideline.成人癌症患者的焦虑和抑郁:ESMO 临床实践指南。
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European Association of Urology-American Society of Clinical Oncology Collaborative Guideline on Penile Cancer: 2023 Update.欧洲泌尿外科学会-美国临床肿瘤学会协作指南:阴茎癌 2023 年更新版。
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What Are the Unmet Supportive Care Needs of People Affected by Cancer: An Umbrella Systematic Review.癌症患者未满足的支持性护理需求有哪些:伞式系统评价。
Semin Oncol Nurs. 2023 Jun;39(3):151353. doi: 10.1016/j.soncn.2022.151353. Epub 2022 Nov 23.
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Social isolation in adults with cancer: An evolutionary concept analysis.成年癌症患者的社会隔离:一项进化概念分析。
Front Psychol. 2022 Oct 3;13:973640. doi: 10.3389/fpsyg.2022.973640. eCollection 2022.
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Global Pattern and Trends in Penile Cancer Incidence: Population-Based Study.全球阴茎癌发病率的模式和趋势:基于人群的研究。
JMIR Public Health Surveill. 2022 Jul 6;8(7):e34874. doi: 10.2196/34874.
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Is There a Role for Palliative Services and Supportive Care in Managing Advanced Penile Cancer?晚期阴茎癌的姑息治疗和支持性护理是否有作用?
Semin Oncol Nurs. 2022 Jun;38(3):151288. doi: 10.1016/j.soncn.2022.151288. Epub 2022 May 22.