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《人民评议》方案:规划一项由公众推动的创新性研究。

The People's Review protocol: planning an innovative study powered by the public.

作者信息

Quinn Éle, Dawson Shoba, Holt Jeremy, Hossain Shahed, Logullo Patricia, O'Brien Ann, Smith Maureen, Stewart Derek, Treweek Shaun, Young Charlene, Noone Chris, Moher David, Hynes Sinéad M

机构信息

Evidence Synthesis Ireland, Discipline of Occupational Therapy, School of Health Sciences, University of Galway, University Road, Galway, H91 TK33, Ireland.

Sheffield Centre for Health and Related Research, University of Sheffield, Sheffield, UK.

出版信息

Res Involv Engagem. 2025 Mar 25;11(1):28. doi: 10.1186/s40900-025-00682-7.

Abstract

BACKGROUND

Systematic reviews provide the best quality evidence about the effectiveness of health treatments. However, systematic reviews and the important role they play in healthcare are not well understood beyond the walls of academia and healthcare. Systematic reviews can help the public make more informed health choices, based on the best available evidence. The People's Review aims to provide an opportunity to members of the public to plan and complete a full systematic review online in a supportive and engaging manner. It will be a learning-by-doing experience to support the public's understanding of what reviews are, how they are done, why they matter, and how they can be used to support everyday health decisions.

METHODS

In The People's Review the public will conduct a full systematic review, deciding the review question, planning the review, working on the parts of the review, and deciding how to share the review findings, in a 'learning by doing' process. The review will be conducted online in eight stages using Cochrane Crowd, an existing citizen science platform. The team working behind-the-scenes of The People's Review will design, produce, and share learning material to support the public's understanding at each stage of the review.

DISCUSSION

Involving the public in a systematic review online will enable members of the public to understand and use systematic reviews in everyday health choices. It provides the public with a unique 'learning by doing' opportunity to get to grips with what systematic reviews are and how they are produced. This article describes how we plan to involve the public in The People's Review. It is not a protocol for the systematic review itself - this will be published separately once the project has commenced, and the public have decided the review question.

摘要

背景

系统评价提供了关于健康治疗有效性的最佳质量证据。然而,除了学术界和医疗保健领域之外,系统评价及其在医疗保健中所起的重要作用并未得到充分理解。系统评价可以帮助公众根据现有最佳证据做出更明智的健康选择。“大众评价”旨在为公众提供一个机会,以一种支持性和引人入胜的方式在线计划并完成一项全面的系统评价。这将是一种通过实践来学习的体验,以支持公众理解评价是什么、如何进行、为何重要以及如何用于支持日常健康决策。

方法

在“大众评价”中,公众将进行一项全面的系统评价,在“通过实践来学习”的过程中确定评价问题、规划评价、开展评价的各个部分,并决定如何分享评价结果。该评价将使用现有的公民科学平台Cochrane Crowd在线分八个阶段进行。在“大众评价”幕后工作的团队将设计、制作并分享学习材料,以支持公众在评价的每个阶段的理解。

讨论

让公众在线参与系统评价将使公众能够在日常健康选择中理解并使用系统评价。它为公众提供了一个独特的“通过实践来学习”的机会,以掌握系统评价是什么以及它们是如何产生的。本文描述了我们计划如何让公众参与“大众评价”。这不是系统评价本身的方案——一旦项目启动且公众确定了评价问题,该方案将另行发布。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/44fc/11934685/3483857c82fb/40900_2025_682_Fig1_HTML.jpg

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