Downing Julia, Randall Duncan, Mcnamara-Goodger Katrina, Ellis Peter, Palat Gayatri, Ali Zipporah, Hunt Jenny, Kiman Rut, Friedel Marie, Neilson Sue
Makerere/ Mulago Palliative Care Unit, Palliative care Education and Research Consortium, Kampala, Uganda.
International Children's Palliative Care Network, Bristol, UK.
BMC Palliat Care. 2025 Apr 2;24(1):89. doi: 10.1186/s12904-025-01653-1.
A public health approach to palliative care has been developed in adult palliative care over several years. Despite the concepts of health and wellbeing, and palliation, dying and death appearing at first to be contradictory, a cogent argument has been made to understand palliative care in the context of promoting public health. However, the application to children's palliative care has not been articulated in depth. The need for and development of children's palliative care is well documented globally, with the public health model, and more recently the WHO conceptual model for palliative care development being key to ongoing development and progress in service delivery. Engaging communities to influence care provision is essential and important to ensure provision of appropriate and sustainable care. Positioning children's palliative care within the public health perspective transforms care and service provision and centres around the child, their childhood and their carers, as part of the community and the wider population. Access to healthcare is vital, of course, but so is access to childhoods which guarantee children's human rights and access to being a child living a childhood, whether that childhood is long, short or leads to an adulthood. Uncovering differing perspectives on the intersection of public health and children's palliative care that varied between global regions, led to the development of eight statements. Our collaboration between colleagues in seven countries in different regions has allowed us to set out the context of the children's palliative public health approach. This reflects a balancing of medical/nursing professionalised care and partnerships, co production and participation of communities. The public health approach to children's palliative care is radical, it is transformational, and means changing how we do things in order to improve the lives of children with palliative care needs and their families around the world.
多年来,成人姑息治疗领域已形成了一种公共卫生视角下的姑息治疗方法。尽管健康、幸福、姑息治疗、临终和死亡等概念乍一看相互矛盾,但人们已提出了一个有说服力的观点,即在促进公共卫生的背景下理解姑息治疗。然而,其在儿童姑息治疗中的应用尚未得到深入阐述。全球范围内,儿童姑息治疗的需求及发展已有充分记录,公共卫生模式以及世界卫生组织最近提出的姑息治疗发展概念模型是服务提供持续发展和进步的关键。让社区参与以影响护理提供对于确保提供适当且可持续的护理至关重要。将儿童姑息治疗置于公共卫生视角内会转变护理和服务提供方式,并以儿童、他们的童年以及他们的照顾者为中心,这是社区和更广泛人群的一部分。获得医疗保健固然至关重要,但获得能保障儿童人权、让他们能像儿童一样度过童年(无论这个童年是长是短,还是会走向成年)的童年环境同样重要。揭示全球不同地区在公共卫生与儿童姑息治疗交叉领域的不同观点,促成了八项声明的形成。我们在七个不同地区国家的同事之间的合作,使我们能够阐述儿童姑息公共卫生方法的背景。这体现了医疗/护理专业化护理与社区伙伴关系、共同生产及参与之间的平衡。儿童姑息治疗的公共卫生方法是激进的、变革性的,意味着要改变我们做事的方式,以改善世界各地有姑息治疗需求的儿童及其家庭的生活。